Supporting the move from pediatric to adult rheumatology care for young people with childhood inflammatory rheumatic diseases.
Official title: Compassionate Care and Organization of Healthcare Services for a Successful Transition in Rheumatology
Run by Assistance Publique - Hôpitaux de Paris · NCT07469787 · Data updated 2026-11-12
This project will see if a structured transition program (early preparation, a therapeutic education workshop, and a joint pediatric–adult visit) helps young people with childhood inflammatory rheumatic diseases manage their care after moving to adult rheumatology.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 50 (estimated) |
| Sponsor | Assistance Publique - Hôpitaux de Paris Academic / other |
| Locations | 1 site (Le Kremlin-Bicêtre) |
| Status | Recruiting |
| Started | February 26, 2026 |
| Main results expected | August 26, 2027 |
| Study ends | August 26, 2027 |
| Registry record updated | April 21, 2026 |
| Trial ID | NCT07469787 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Adults (18+) with a diagnosed chronic inflammatory rheumatic disease who were previously followed in pediatric rheumatology at Bicêtre and who attended a joint pediatric–adult transition consultation between 2018 and 2024 are the intended participants.
✕Probably not a fit
Patients who were lost to follow-up, who did not participate in a joint pediatric–adult transition consultation, or who are under guardianship/curatorship/legal protection are excluded and unlikely to benefit from the study findings.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
BOOST-R is a monocentric, non-interventional observational study at Bicêtre University Hospital examining real-world transition outcomes after transfer from pediatric to adult rheumatology. Adult patients who were followed in pediatric rheumatology and attended a joint pediatric–adult transition consultation between 2018 and 2024 are contacted by postal mail and invited to complete an online questionnaire. The study compares different transition modalities (education workshop plus joint consultation versus joint consultation only) using a validated French transition-readiness questionnaire and measures of self-management and follow-up. The design aims to capture real-life effectiveness of the implemented transition program rather than test a new intervention.
Why it matters
Potential benefit: If successful, the work could identify which transition approaches help young adults maintain treatment, keep follow-up appointments, and improve self-management after moving to adult care.
How similar studies have gone: Structured transition programs have shown benefits for autonomy and continuity in other chronic diseases and some pilot rheumatology efforts are promising, but robust real-world data in rheumatology remain limited.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Age 18 years or older * Diagnosis of chronic inflammatory rheumatic disease * Previously followed in pediatric rheumatology at Bicêtre Hospital * Participation in a joint pediatric-adult transition consultation between 2018 and 2024 * Affiliated with a health insurance system * No objection expressed to participation after being informed about the study Exclusion Criteria: * Patient lost to follow-up * No participation in a joint pediatric-adult transition consultation * Patient under guardianship, curatorship, or legal protection
Where it's running
-
CHU Bicêtre
Le Kremlin-Bicêtre, France Recruiting
Study contacts
- Study coordinator: Perrine DUSSER, MD PhD
- Email: perrine.dusser@aphp.fr
- Phone: 145213146
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.