Clinical trial Recruiting at 1 site Observational Ages 18 and up

Screening for financial hardship in Alzheimer's and dementia patients

Official title: Development of Measures to Screen for Financial Hardship in Alzheimer's Disease and Dementia

Run by Fred Hutchinson Cancer Center · NCT06922188 · Data updated 2026-11-12

This study is trying to understand the financial struggles faced by people with Alzheimer's and their caregivers to see how it affects their well-being and care choices.

More s Disease (AD) trials

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment2460 (estimated)
SponsorFred Hutchinson Cancer Center
Academic / other
Locations1 site (Seattle, Washington)
StatusRecruiting
StartedMarch 31, 2025
Main results expectedSeptember 18, 2029
Study endsDecember 18, 2029
Registry record updatedAugust 19, 2026
Trial IDNCT06922188 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include adults aged 18 or older with a clinical diagnosis of Alzheimer's disease or related dementia, as well as their caregivers.

Probably not a fit

Patients who are unable to provide informed consent due to cognitive impairment will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study investigates the financial challenges faced by individuals with Alzheimer's Disease and related dementias (AD/ADRD) and their caregivers. It employs qualitative interviews, content validation surveys, and quantitative data collection to assess various financial stressors, caregiving costs, and coping strategies. The first phase includes semi-structured interviews conducted remotely or in person, focusing on changes in financial circumstances before and after diagnosis, and the impact of financial hardship on well-being and care decisions. The goal is to develop suitable screening measures to better address the needs of patients and caregivers experiencing financial strain.

Why it matters

Potential benefit: If successful, this study could lead to improved screening tools that help identify and address financial hardships faced by patients and caregivers of those with Alzheimer's and related dementias.

How similar studies have gone: While this approach to screening for financial hardship in AD/ADRD is novel, other studies have highlighted the importance of addressing social determinants of health in chronic conditions.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Adults aged 18 years or older
* One of the following:

  * Clinical diagnosis of Alzheimer's disease or related dementia
  * Being a caregiver to individuals with clinical diagnosis of Alzheimer's disease or related dementia
* Able to read and speak English or Spanish
* Able to provide informed consent
* Residing in the United States

Exclusion Criteria:

• Cognitive impairment precluding informed consent

Where it's running

  • Fred Hutchinson Cancer Center
    Seattle, Washington, United States
    Recruiting

Study contacts

  • Principal investigator: Salene MW Jones, PhD, MA — Fred Hutchinson Cancer Center
  • Study coordinator: Diana K Lowry, MPH
  • Email: dlowry@fredhutch.org
  • Phone: 206-667-7372

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.