Screening for financial hardship in Alzheimer's and dementia patients
Development of Measures to Screen for Financial Hardship in Alzheimer's Disease and Dementia
This study is trying to understand the financial struggles faced by people with Alzheimer's and their caregivers to see how it affects their well-being and care choices.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2460 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Fred Hutchinson Cancer Center Academic / other |
| Locations | 1 site (Seattle, Washington) |
| Trial ID | NCT06922188 on ClinicalTrials.gov |
What this trial studies
This study investigates the financial challenges faced by individuals with Alzheimer's Disease and related dementias (AD/ADRD) and their caregivers. It employs qualitative interviews, content validation surveys, and quantitative data collection to assess various financial stressors, caregiving costs, and coping strategies. The first phase includes semi-structured interviews conducted remotely or in person, focusing on changes in financial circumstances before and after diagnosis, and the impact of financial hardship on well-being and care decisions. The goal is to develop suitable screening measures to better address the needs of patients and caregivers experiencing financial strain.
Who should consider this trial
Good fit: Ideal candidates include adults aged 18 or older with a clinical diagnosis of Alzheimer's disease or related dementia, as well as their caregivers.
Not a fit: Patients who are unable to provide informed consent due to cognitive impairment will not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved screening tools that help identify and address financial hardships faced by patients and caregivers of those with Alzheimer's and related dementias.
How similar studies have performed: While this approach to screening for financial hardship in AD/ADRD is novel, other studies have highlighted the importance of addressing social determinants of health in chronic conditions.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adults aged 18 years or older * One of the following: * Clinical diagnosis of Alzheimer's disease or related dementia * Being a caregiver to individuals with clinical diagnosis of Alzheimer's disease or related dementia * Able to read and speak English or Spanish * Able to provide informed consent * Residing in the United States Exclusion Criteria: • Cognitive impairment precluding informed consent
Where this trial is running
Seattle, Washington
- Fred Hutchinson Cancer Center — Seattle, Washington, United States (Recruiting)
Study contacts
- Principal investigator: Salene MW Jones, PhD, MA — Fred Hutchinson Cancer Center
- Study coordinator: Diana K Lowry, MPH
- Email: dlowry@fredhutch.org
- Phone: 206-667-7372
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.