Clinical trial Recruiting at 1 site Observational Ages 30 to 100

Registry of patients with idiopathic pulmonary fibrosis in South Korea

Official title: Korean Idiopathic Pulmonary Fibrosis Registry

Run by Seoul National University Hospital · NCT04160715 · Data updated 2026-11-12

This study is collecting information from patients with idiopathic pulmonary fibrosis in South Korea to better understand the disease and improve how it's managed.

More Idiopathic Pulmonary Fibrosis trials

Quick facts

Study typeObservational
Ages30 Years to 100 Years
SexAll
Enrollment3000 (estimated)
SponsorSeoul National University Hospital
Academic / other
Locations1 site (Seongnam-si)
StatusRecruiting
StartedJanuary 2016
Main results expectedJanuary 2025
Study endsDecember 2026
Registry record updatedNovember 13, 2019
Trial IDNCT04160715 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this registry are patients diagnosed with idiopathic pulmonary fibrosis through a multidisciplinary discussion.

Probably not a fit

Patients with other interstitial lung diseases, connective tissue disease-related ILD, or exposure-related ILD will not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This multicenter prospective registry collects data from patients diagnosed with idiopathic pulmonary fibrosis (IPF) across 30 hospitals in South Korea. The Seoul National University Bundang Hospital serves as the coordination center for this initiative, which aims to gather comprehensive demographic, pulmonary function, laboratory data, and chest CT findings. By documenting the hospital course of IPF patients, the registry seeks to enhance understanding of the disease and improve patient management.

Why it matters

Potential benefit: If successful, this registry could lead to improved diagnosis and treatment strategies for patients with idiopathic pulmonary fibrosis.

How similar studies have gone: While this registry approach is common in various diseases, the specific focus on idiopathic pulmonary fibrosis in South Korea may provide novel insights into the condition.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* IPF patients diagnosed by multidisciplinary discussion

Exclusion Criteria:

* Other interstitial lung diseases except for IPF
* connective tissue disease-related ILD
* exposure-related ILD

Where it's running

  • Seoul National University Bundang Hospital
    Seongnam-si, South Korea
    Recruiting

Study contacts

  • Principal investigator: Man Pyo Chung, MD — Samsung Medical Center
  • Study coordinator: Jong Sun Park, MD
  • Email: jspark.im@gmail.com

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

  • New IPF drug ORJ-001 tested in adults with IPF

    A phase 2 study tests ORJ-001 versus placebo in adults with idiopathic pulmonary fibrosis to see if it is tolerated and whether it helps lung function.

    Recruiting at 2 sites Phase 2 Oorja Bio, Inc. · Doral, Florida and 1 other locations · NCT07869147

  • Nalbuphine ER for IPF-related chronic cough

    This study tests whether extended-release nalbuphine tablets can reduce chronic cough in people with idiopathic pulmonary fibrosis.

    Recruiting at 4 sites Phase 3 Trevi Therapeutics · Wilmington, Delaware and 3 other locations · NCT07868419

  • Inspiratory Flow Rate Capability in Pulmonary Fibrosis Patients

    This observational study tests how fast patients with IPF or PPF can inhale through dry powder inhalers with different resistances.

    Recruiting Shanghai Pulmonary Hospital, Shanghai, China · Shanghai, Shanghai Municipality · NCT07820254

  • Photon-counting CT vs standard HRCT to help diagnose IPF and other ILDs

    This study tests whether photon-counting CT can improve identifying IPF and other ILDs compared with standard HRCT for patients discussed in multidisciplinary teams.

    Recruiting Istituto Clinico Humanitas · Rozzano, Italy · NCT07790614

  • Rentosertib by mouth for people with idiopathic pulmonary fibrosis

    This is a randomized, placebo-controlled test to see if Rentosertib helps adults with idiopathic pulmonary fibrosis when taken as a pill.

    Recruiting at 12 sites Phase 3 InSilico Medicine Hong Kong Limited · Hefei, Anhui and 46 other locations · NCT07687459

  • Inhaled nintedanib powder for IPF in adults

    This study tests whether an inhaled form of nintedanib can safely help adults with idiopathic pulmonary fibrosis.

    Recruiting Phase 2 Mannkind Corporation · Windsor, Ontario · NCT07679893

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.