Registry of patients with idiopathic pulmonary fibrosis in South Korea
Official title: Korean Idiopathic Pulmonary Fibrosis Registry
Run by Seoul National University Hospital · NCT04160715 · Data updated 2026-11-12
This study is collecting information from patients with idiopathic pulmonary fibrosis in South Korea to better understand the disease and improve how it's managed.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 30 Years to 100 Years |
| Sex | All |
| Enrollment | 3000 (estimated) |
| Sponsor | Seoul National University Hospital Academic / other |
| Locations | 1 site (Seongnam-si) |
| Status | Recruiting |
| Started | January 2016 |
| Main results expected | January 2025 |
| Study ends | December 2026 |
| Registry record updated | November 13, 2019 |
| Trial ID | NCT04160715 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are patients diagnosed with idiopathic pulmonary fibrosis through a multidisciplinary discussion.
✕Probably not a fit
Patients with other interstitial lung diseases, connective tissue disease-related ILD, or exposure-related ILD will not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This multicenter prospective registry collects data from patients diagnosed with idiopathic pulmonary fibrosis (IPF) across 30 hospitals in South Korea. The Seoul National University Bundang Hospital serves as the coordination center for this initiative, which aims to gather comprehensive demographic, pulmonary function, laboratory data, and chest CT findings. By documenting the hospital course of IPF patients, the registry seeks to enhance understanding of the disease and improve patient management.
Why it matters
Potential benefit: If successful, this registry could lead to improved diagnosis and treatment strategies for patients with idiopathic pulmonary fibrosis.
How similar studies have gone: While this registry approach is common in various diseases, the specific focus on idiopathic pulmonary fibrosis in South Korea may provide novel insights into the condition.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * IPF patients diagnosed by multidisciplinary discussion Exclusion Criteria: * Other interstitial lung diseases except for IPF * connective tissue disease-related ILD * exposure-related ILD
Where it's running
-
Seoul National University Bundang Hospital
Seongnam-si, South Korea Recruiting
Study contacts
- Principal investigator: Man Pyo Chung, MD — Samsung Medical Center
- Study coordinator: Jong Sun Park, MD
- Email: jspark.im@gmail.com
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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New IPF drug ORJ-001 tested in adults with IPF
A phase 2 study tests ORJ-001 versus placebo in adults with idiopathic pulmonary fibrosis to see if it is tolerated and whether it helps lung function.
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Nalbuphine ER for IPF-related chronic cough
This study tests whether extended-release nalbuphine tablets can reduce chronic cough in people with idiopathic pulmonary fibrosis.
-
Inspiratory Flow Rate Capability in Pulmonary Fibrosis Patients
This observational study tests how fast patients with IPF or PPF can inhale through dry powder inhalers with different resistances.
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Photon-counting CT vs standard HRCT to help diagnose IPF and other ILDs
This study tests whether photon-counting CT can improve identifying IPF and other ILDs compared with standard HRCT for patients discussed in multidisciplinary teams.
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Rentosertib by mouth for people with idiopathic pulmonary fibrosis
This is a randomized, placebo-controlled test to see if Rentosertib helps adults with idiopathic pulmonary fibrosis when taken as a pill.
-
Inhaled nintedanib powder for IPF in adults
This study tests whether an inhaled form of nintedanib can safely help adults with idiopathic pulmonary fibrosis.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.