Registry for patients with Hypertrophic Cardiomyopathy in Austria

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Austrian Hypertrophic Cardiomyopathy (HCM) Registry is a prospective, multicenter initiative that enrolls patients from various outpatient clinics across Austria. Participants undergo a structured examination process that includes assessments of symptoms, medical history, and genetic testing, along with clinical data collection through electrocardiograms and echocardiography. The registry aims to standardize clinical assessments and facilitate innovative epidemiological analyses to address gaps in evidence related to HCM. Data collected will be managed through an electronic case report form, allowing for multicenter analyses under the oversight of a steering committee.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Patients admitted to the HCM outpatient clinic of participating centers of the HCM Registry
* Interventricular septal thickness ≥ 13 mm and cardiomyopathy-specific red flags OR Interventricular septal thickness ≥ 15 mm not explainable by loading conditions OR Interventricular septal thickness ≥ 17 mm
* Willingness and ability to provide signed informed consent form (ICF) prior to participation in any study-related procedures

Exclusion criteria:

* Age \< 18 years
* Known cardiac amyloidosis

Where it's running

• Kepler University Hospital Linz
  Linz, Linz, Austria Recruiting
• University Hospital St. Pölten
  Sankt Pölten, Lower Austria, Austria Recruiting
• Hospital Landesklinikum Wiener Neustadt
  Wiener Neustadt, Lower Austria, Austria Recruiting
• Paracelsus Medical University of Salzburg
  Salzburg, State of Salzburg, Austria Recruiting
• Clinic Cardinal Schwarzenberg
  Schwarzach im Pongau, State of Salzburg, Austria Recruiting
• Medical University of Vienna
  Vienna, State of Vienna, Austria Recruiting

Study contacts

• Study coordinator: Nicolas D Verheyen, MD
• Email: nicolas.verheyen@medunigraz.at
• Phone: 004331638530173

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.