Registry for patients with emphysema and COPD
Official title: Emphysema Research Registry; Screening Study and Genetic Testing
Run by University of Pittsburgh · NCT00307281 · Data updated 2026-11-12
This study is collecting information from people with emphysema and COPD to help researchers learn more about these lung diseases and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 21 Years and up |
| Sex | All |
| Enrollment | 3000 (estimated) |
| Sponsor | University of Pittsburgh Academic / other |
| Locations | 1 site (Pittsburgh, Pennsylvania) |
| Status | Recruiting |
| Started | August 2000 |
| Main results expected | July 2030 |
| Study ends | July 2030 |
| Registry record updated | October 6, 2026 |
| Trial ID | NCT00307281 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are individuals diagnosed with COPD based on clinical history, pulmonary function tests, or radiographic results.
✕Probably not a fit
Patients without a diagnosis of COPD or emphysema will not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The Emphysema Research Registry at the University of Pittsburgh Medical Center aims to gather comprehensive data from patients diagnosed with emphysema and related lung disorders. This observational study will collect personal information, medical history, and perform various lung function tests, including spirometry and questionnaires assessing respiratory symptoms and quality of life. The registry will facilitate research to enhance understanding of emphysema and identify candidates for future therapeutic studies. By analyzing collected DNA and health data, the study seeks to advance treatment options for patients with chronic lung diseases.
Why it matters
Potential benefit: If successful, this research could lead to improved therapies and management strategies for patients with emphysema and COPD.
How similar studies have gone: Other studies focusing on COPD and emphysema have shown promise in advancing treatment options, indicating that this approach is supported by prior research.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Patients would be required to have COPD based on at least one of the following: clinical history, pulmonary function results, or radiographic results. Exclusion Criteria: * none
Where it's running
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University of Pittsburgh Emphysema/COPD Research Center
Pittsburgh, Pennsylvania, United States Recruiting
Study contacts
- Principal investigator: Frank C. Sciurba, MD — University of Pittsburgh Medical Center
- Study coordinator: Paula Consolaro, CCRC
- Email: consolaropj@upmc.edu
- Phone: 412-692-4800
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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TPB-based cadence exercise and breathing training for COPD patients
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This study looks at existing dynamic chest radiography data to see if new imaging measurements can identify COPD patterns, gauge severity, and predict who may experience faster progression.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.