Clinical trial Recruiting at 1 site Observational Ages 21 and up

Registry for patients with emphysema and COPD

Official title: Emphysema Research Registry; Screening Study and Genetic Testing

Run by University of Pittsburgh · NCT00307281 · Data updated 2026-11-12

This study is collecting information from people with emphysema and COPD to help researchers learn more about these lung diseases and improve future treatments.

Quick facts

Study typeObservational
Ages21 Years and up
SexAll
Enrollment3000 (estimated)
SponsorUniversity of Pittsburgh
Academic / other
Locations1 site (Pittsburgh, Pennsylvania)
StatusRecruiting
StartedAugust 2000
Main results expectedJuly 2030
Study endsJuly 2030
Registry record updatedOctober 6, 2026
Trial IDNCT00307281 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are individuals diagnosed with COPD based on clinical history, pulmonary function tests, or radiographic results.

Probably not a fit

Patients without a diagnosis of COPD or emphysema will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Emphysema Research Registry at the University of Pittsburgh Medical Center aims to gather comprehensive data from patients diagnosed with emphysema and related lung disorders. This observational study will collect personal information, medical history, and perform various lung function tests, including spirometry and questionnaires assessing respiratory symptoms and quality of life. The registry will facilitate research to enhance understanding of emphysema and identify candidates for future therapeutic studies. By analyzing collected DNA and health data, the study seeks to advance treatment options for patients with chronic lung diseases.

Why it matters

Potential benefit: If successful, this research could lead to improved therapies and management strategies for patients with emphysema and COPD.

How similar studies have gone: Other studies focusing on COPD and emphysema have shown promise in advancing treatment options, indicating that this approach is supported by prior research.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patients would be required to have COPD based on at least one of the following: clinical history, pulmonary function results, or radiographic results.

Exclusion Criteria:

* none

Where it's running

  • University of Pittsburgh Emphysema/COPD Research Center
    Pittsburgh, Pennsylvania, United States
    Recruiting

Study contacts

  • Principal investigator: Frank C. Sciurba, MD — University of Pittsburgh Medical Center
  • Study coordinator: Paula Consolaro, CCRC
  • Email: consolaropj@upmc.edu
  • Phone: 412-692-4800

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

  • Evaluating a new valve for lung volume reduction in COPD patients

    This study is testing a new valve to see if it can safely help people with COPD and emphysema breathe better and feel more active after a lung procedure.

    Recruiting China-Japan Friendship Hospital · Beijing, Beijing Municipality · NCT06349174

  • A patient registry for COPD research

    This study is gathering health information from over 75,000 people with COPD to help find better treatments and a cure for the disease.

    Recruiting COPD Foundation · Washington D.C., District of Columbia · NCT02803242

  • Xenon MRI test for lung changes after Apreo BREATHE airway treatment in emphysema

    This study tests whether hyperpolarized Xenon MRI can show regional ventilation and gas-exchange changes after the Apreo BREATHE airway scaffolds in people with emphysema and air trapping.

    Recruiting Early Phase 1 Apreo Health, Inc. · Birmingham, Alabama and 1 other locations · NCT07896902

  • Flutter therapy added to chest physiotherapy after CABG in COPD patients

    This study tests whether adding Flutter therapy to standard chest physiotherapy helps post-CABG patients with mild-to-moderate COPD improve breathing more than chest physiotherapy alone.

    Recruiting Foundation University Islamabad · Rawalpindi · NCT07875049

  • TPB-based cadence exercise and breathing training for COPD patients

    A TPB-based program tests whether breathing training, cadence-guided walking, or both can improve lung function, exercise capacity, and quality of life in adults with COPD.

    Recruiting Fu Jen Catholic University Hospital · New Taipei City, New Taipei City and 1 other locations · NCT07860008

  • See how dynamic chest X-rays relate to COPD patterns and progression risk

    This study looks at existing dynamic chest radiography data to see if new imaging measurements can identify COPD patterns, gauge severity, and predict who may experience faster progression.

    Recruiting Nanfang Hospital, Southern Medical University · Guangzhou, Guangdong · NCT07762573

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.