Registry for patients with emphysema and COPD
Emphysema Research Registry; Screening Study and Genetic Testing
University of Pittsburgh · NCT00307281
This study is collecting information from people with emphysema and COPD to help researchers learn more about these lung diseases and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 3000 (estimated) |
| Ages | 21 Years and up |
| Sex | All |
| Sponsor | University of Pittsburgh (other) |
| Locations | 1 site (Pittsburgh, Pennsylvania) |
| Trial ID | NCT00307281 on ClinicalTrials.gov |
What this trial studies
The Emphysema Research Registry at the University of Pittsburgh Medical Center aims to gather comprehensive data from patients diagnosed with emphysema and related lung disorders. This observational study will collect personal information, medical history, and perform various lung function tests, including spirometry and questionnaires assessing respiratory symptoms and quality of life. The registry will facilitate research to enhance understanding of emphysema and identify candidates for future therapeutic studies. By analyzing collected DNA and health data, the study seeks to advance treatment options for patients with chronic lung diseases.
Who should consider this trial
Good fit: Ideal candidates for this study are individuals diagnosed with COPD based on clinical history, pulmonary function tests, or radiographic results.
Not a fit: Patients without a diagnosis of COPD or emphysema will not benefit from this study.
Why it matters
Potential benefit: If successful, this research could lead to improved therapies and management strategies for patients with emphysema and COPD.
How similar studies have performed: Other studies focusing on COPD and emphysema have shown promise in advancing treatment options, indicating that this approach is supported by prior research.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Patients would be required to have COPD based on at least one of the following: clinical history, pulmonary function results, or radiographic results. Exclusion Criteria: * none
Where this trial is running
Pittsburgh, Pennsylvania
- University of Pittsburgh Emphysema/COPD Research Center — Pittsburgh, Pennsylvania, United States (RECRUITING)
Study contacts
- Principal investigator: Frank C. Sciurba, MD — University of Pittsburgh Medical Center
- Study coordinator: Paula Consolaro, CCRC
- Email: consolaropj@upmc.edu
- Phone: 412-692-4800
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Emphysema, Chronic Obstructive Pulmonary Disease, Chronic Bronchitis