Registry for patients with bone and soft tissue tumors
Official title: An Electronic Health Record (EHR)-Based Comprehensive Bone and Soft Tissue Tumor Registry
Run by Ohio State University Comprehensive Cancer Center · NCT02677961 · Data updated 2026-11-12
This study is creating a secure online registry to collect health information from people with bone and soft tissue tumors to help improve treatment and understand their condition better.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 1500 (estimated) |
| Sponsor | Ohio State University Comprehensive Cancer Center Academic / other |
| Locations | 1 site (Columbus, Ohio) |
| Status | Recruiting |
| Started | July 1, 2015 |
| Main results expected | December 31, 2027 |
| Study ends | December 31, 2027 |
| Registry record updated | February 11, 2026 |
| Trial ID | NCT02677961 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include individuals diagnosed or presumed to have bone or soft tissue tumors as classified by the WHO.
✕Probably not a fit
Patients who are prisoners will not benefit from this study as they are excluded from participation.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This study aims to create a secure electronic health record (EHR)-based registry to collect clinical and research data on individuals diagnosed with bone and soft tissue tumors. It focuses on identifying clinical and molecular features that may influence prognosis and treatment responses. The registry will also standardize the collection of biospecimens for biomarker analysis and promote collaboration between institutions for future research. Patients will complete quality of life questionnaires and may provide blood samples over a two-year period.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of bone and soft tissue tumors, leading to improved treatment strategies and patient outcomes.
How similar studies have gone: Other studies have successfully utilized similar registry approaches to enhance cancer research, particularly for rare diseases.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Must have a diagnosis or presumed diagnosis of bone or soft tissue tumor as defined by the WHO classification of tumors of soft tissue and bone (4th ed.) * Patient, or his/her designated power of attorney, must be able to understand and approve of the consent to participate. Exclusion Criteria: * Prisoners are excluded from participation in the Registry.
Where it's running
-
Ohio State University
Columbus, Ohio, United States Recruiting
Study contacts
- Principal investigator: David A Liebner, MD — Ohio State University
- Study coordinator: Erin Fetzer
- Email: erin.fetzer@osumc.edu
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.