Registry for patients with adrenocortical carcinoma in Germany
Official title: Deutsches Nebennieren-Karzinom-Register - German Adrenocortical Carcinoma Registry
Run by University of Wuerzburg · NCT00453674 · Data updated 2026-11-12
This study is collecting information from patients with adrenocortical cancer in Germany to help improve their treatment and care in the future.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 1000 (estimated) |
| Sponsor | University of Wuerzburg Academic / other |
| Locations | 1 site (Würzburg) |
| Status | Recruiting |
| Started | January 1, 2003 |
| Main results expected | December 31, 2030 |
| Study ends | December 31, 2030 |
| Registry record updated | August 24, 2026 |
| Trial ID | NCT00453674 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are individuals with a histologically confirmed diagnosis of adrenocortical carcinoma.
✕Probably not a fit
Patients without a confirmed diagnosis of adrenocortical carcinoma will not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The German Adrenocortical Carcinoma Registry aims to enhance the care of patients diagnosed with adrenocortical cancer by collecting extensive data on treatment outcomes and prognoses. By registering as many patients as possible, the study facilitates the planning of future prospective studies and improves recruitment for these studies. The registry also aims to collaborate with international networks to systematically enhance treatment strategies for this rare cancer.
Why it matters
Potential benefit: If successful, this registry could lead to improved treatment protocols and outcomes for patients with adrenocortical carcinoma.
How similar studies have gone: Other registries and collaborative studies in oncology have shown success in improving patient outcomes through data collection and analysis.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Histologically confirmed diagnosis of adrenocortical carcinoma
Where it's running
-
University of Wuerzburg
Würzburg, Germany Recruiting
Study contacts
- Principal investigator: Martin Fassnacht, MD — University of Wuerzburg
- Study coordinator: Martin Fassnacht, MD
- Email: fassnacht_m@medizin.uni-wuerzburg.de
- Phone: 49-931-201-36507
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.