Registry for Myasthenia Gravis patients at Yale University
Exploring Outcomes and Characteristics of Myasthenia Gravis: The EXPLORE MG Registry
This study is collecting information from people with Myasthenia Gravis at Yale University to help understand the disease better and improve care for patients.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 800 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Yale University Academic / other |
| Locations | 1 site (New Haven, Connecticut) |
| Trial ID | NCT03792659 on ClinicalTrials.gov |
What this trial studies
This registry aims to collect and analyze data from patients diagnosed with Myasthenia Gravis (MG) at Yale University. It will gather biological specimens, clinical data, and information on disease management, healthcare utilization, and treatment outcomes. By studying these various aspects, the registry will enhance understanding of MG and support future research initiatives. The data collected will be instrumental in answering critical questions about the disease and improving patient care.
Who should consider this trial
Good fit: Ideal candidates for this registry are adult patients diagnosed with Myasthenia Gravis who are receiving care at the Yale Department of Neurology.
Not a fit: Patients who do not have a diagnosis of Myasthenia Gravis will not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and management of Myasthenia Gravis, ultimately enhancing patient outcomes.
How similar studies have performed: Other registries focusing on chronic conditions have shown success in advancing research and improving patient care, indicating a positive outlook for this approach.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adult patients diagnosed with Myasthenia Gravis presenting to the Yale Department of Neurology for clinical care or research interventions will be invited to donate their biological specimens/clinical data. Exclusion Criteria: * Failure to meet the Inclusion Criteria.
Where this trial is running
New Haven, Connecticut
- Yale-New Haven Hospital — New Haven, Connecticut, United States (Recruiting)
Study contacts
- Principal investigator: Richard Nowak, MD, MS — Assistant Professor, Yale University
- Study coordinator: Bailey Sheldon, PhD
- Email: bailey.munrosheldon@yale.edu
- Phone: 203-737-7095
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.