Registry for ME/CFS patients in Germany

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to establish a large-scale registry to collect data on the epidemiology, phenotypes, and disease trajectories of ME/CFS in Germany. It focuses on individuals of all ages affected by ME/CFS, particularly in the context of long-term effects following COVID-19 and other viral infections. The registry will facilitate future clinical trials by providing valuable insights into the condition and its management. The study will include patients diagnosed with ME/CFS based on established international criteria and will gather comprehensive health data.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* ME/CFS diagnosis (ICD-10 G93.3) based on internationally established criteria
* Informed consent by patients and/or guardian(s)

Exclusion Criteria:

* No ME/CFS (ICD-10 G93.3)
* No informed consent

Where it's running

• MRI Chronic Fatigue Center for Young People (MCFC) Children's Hospital, Technical University of Munich & Munich Municipal Hospital
  Munich, Bavaria, Germany Recruiting

Study contacts

• Principal investigator: Uta Behrends, Prof. Dr. med. — MRI Chronic Fatigue Center for Young People (MCFC) Children's Hospital, Technical University of Munich & Munich Municipal Hospital
• Study coordinator: Uta Behrends, Prof. Dr. med.
• Email: uta.behrends@tum.de
• Phone: +4989 30682632

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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• Whole-body Cryotherapy for Fatigue in ME/CFS, Fibromyalgia, Long COVID

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• Hyperbaric Oxygen Therapy for ME/CFS

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• Immunoadsorption for autoantibody-positive post-infectious ME/CFS

  This study will try immunoadsorption (a blood-filtering procedure) to remove autoantibodies in adults with infection-triggered ME/CFS, including cases after COVID, who have detectable antibodies.

  Recruiting Charite University, Berlin, Germany · Berlin, State of Berlin · NCT07529197

• Outreach medical care for housebound adults with Post-COVID syndrome or ME/CFS

  This project will try home visits and remote assessments to learn the symptoms and care needs of adults who are housebound with Post‑COVID syndrome or ME/CFS.

  Recruiting Hannover Medical School · Hanover · NCT07352254

• Improving life for patients with chronic fatigue syndrome

  This study is testing if two medications can help people aged 18-65 with chronic fatigue syndrome feel better and manage their symptoms.

  Recruiting Phase 2 Brigham and Women's Hospital · Boston, Massachusetts · NCT06366724

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.