Clinical trial Recruiting at 1 site Observational Ages 18 and up

Registry for interstitial lung disease patients

Official title: Dorothy P. and Richard P Simmons Center for Interstitial Lung Disease Research Registry

Run by University of Pittsburgh · NCT00258583 · Data updated 2026-11-12

This study is gathering medical records from people with interstitial lung disease to help researchers learn more about the condition and improve future treatments.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment5000 (estimated)
SponsorUniversity of Pittsburgh
Academic / other
Locations1 site (Pittsburgh, Pennsylvania)
StatusRecruiting
StartedOctober 2003
Main results expectedJuly 2035
Study endsJuly 2035
Registry record updatedAugust 27, 2026
Trial IDNCT00258583 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates are adult patients aged 18 and older seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease.

Probably not a fit

Patients who are not seeking treatment for interstitial lung disease or are under 18 years old may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study collects past, current, and future medical records of patients with interstitial lung disease at the UPMC Simmons Center. Participants grant permission for their medical information to be included in a research registry, which will facilitate research aimed at understanding interstitial lung disease better. The registry will enable researchers to analyze a large dataset to answer critical questions about the disease and its treatment, as well as help identify and recruit patients for future studies.

Why it matters

Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with interstitial lung disease.

How similar studies have gone: Other studies utilizing patient registries for chronic diseases have shown success in advancing research and treatment options.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Adult patients who are seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease
* 18 years of age or older

Exclusion Criteria:

* N/A

Where it's running

  • Michelle F MacPherson
    Pittsburgh, Pennsylvania, United States
    Recruiting

Study contacts

  • Principal investigator: Kevin F Gibson, MD — University of Pittsburgh - UPMC Simmons Center for Interstitial Lung Disease
  • Study coordinator: Michelle F MacPherson, MAT
  • Email: macphersonmj@upmc.edu
  • Phone: 412-647-4537

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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  • Nebulized human amniotic fluid for interstitial lung disease

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  • Evaluating Olokizumab for Progressive Fibrosing Lung Diseases

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    Recruiting at 33 sites Phase 2/3 R-Pharm · Barnaul and 32 other locations · NCT06440746

  • Testing hymecromone in adults with interstitial lung disease

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    Recruiting Phase 2 National Institutes of Health Clinical Center (CC) · Research Triangle Park, North Carolina · NCT06325696

  • Digital self-management package for people with interstitial lung disease

    This study is testing a new smartphone app designed to help people with interstitial lung disease manage their health better and feel improved overall compared to standard care.

    Recruiting at 4 sites University of Sydney · Sydney, New South Wales and 3 other locations · NCT06122233

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.