Registry for interstitial lung disease patients
Official title: Dorothy P. and Richard P Simmons Center for Interstitial Lung Disease Research Registry
Run by University of Pittsburgh · NCT00258583 · Data updated 2026-11-12
This study is gathering medical records from people with interstitial lung disease to help researchers learn more about the condition and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 5000 (estimated) |
| Sponsor | University of Pittsburgh Academic / other |
| Locations | 1 site (Pittsburgh, Pennsylvania) |
| Status | Recruiting |
| Started | October 2003 |
| Main results expected | July 2035 |
| Study ends | July 2035 |
| Registry record updated | August 27, 2026 |
| Trial ID | NCT00258583 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are adult patients aged 18 and older seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease.
✕Probably not a fit
Patients who are not seeking treatment for interstitial lung disease or are under 18 years old may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This study collects past, current, and future medical records of patients with interstitial lung disease at the UPMC Simmons Center. Participants grant permission for their medical information to be included in a research registry, which will facilitate research aimed at understanding interstitial lung disease better. The registry will enable researchers to analyze a large dataset to answer critical questions about the disease and its treatment, as well as help identify and recruit patients for future studies.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with interstitial lung disease.
How similar studies have gone: Other studies utilizing patient registries for chronic diseases have shown success in advancing research and treatment options.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adult patients who are seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease * 18 years of age or older Exclusion Criteria: * N/A
Where it's running
-
Michelle F MacPherson
Pittsburgh, Pennsylvania, United States Recruiting
Study contacts
- Principal investigator: Kevin F Gibson, MD — University of Pittsburgh - UPMC Simmons Center for Interstitial Lung Disease
- Study coordinator: Michelle F MacPherson, MAT
- Email: macphersonmj@upmc.edu
- Phone: 412-647-4537
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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TX000045 for pulmonary hypertension from interstitial lung disease
This study tests TX000045 to see if it can reduce pulmonary vascular resistance in people with PH caused by interstitial lung disease and to check its safety.
-
Nebulized human amniotic fluid for interstitial lung disease
This pilot will try nebulized diluted human amniotic fluid (HAF‑Matrix) in adults 40–90 with interstitial lung disease to check safety and look for early signs of benefit.
-
Evaluating Belimumab for Lung Disease Linked to Autoimmune Conditions
This study is testing if the medication belimumab can help adults with lung disease caused by autoimmune conditions feel better and breathe easier.
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Evaluating Olokizumab for Progressive Fibrosing Lung Diseases
This study is testing if a new injection called olokizumab can help people with progressive fibrosing lung diseases breathe better and improve their overall health compared to a placebo.
-
Testing hymecromone in adults with interstitial lung disease
This study is testing a new medication called hymecromone to see if it can help adults with progressive interstitial lung disease feel better and improve their lung function.
-
Digital self-management package for people with interstitial lung disease
This study is testing a new smartphone app designed to help people with interstitial lung disease manage their health better and feel improved overall compared to standard care.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.