Registry for interstitial lung disease patients
Dorothy P. and Richard P Simmons Center for Interstitial Lung Disease Research Registry
This study is gathering medical records from people with interstitial lung disease to help researchers learn more about the condition and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 5000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | University of Pittsburgh Academic / other |
| Locations | 1 site (Pittsburgh, Pennsylvania) |
| Trial ID | NCT00258583 on ClinicalTrials.gov |
What this trial studies
This study collects past, current, and future medical records of patients with interstitial lung disease at the UPMC Simmons Center. Participants grant permission for their medical information to be included in a research registry, which will facilitate research aimed at understanding interstitial lung disease better. The registry will enable researchers to analyze a large dataset to answer critical questions about the disease and its treatment, as well as help identify and recruit patients for future studies.
Who should consider this trial
Good fit: Ideal candidates are adult patients aged 18 and older seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease.
Not a fit: Patients who are not seeking treatment for interstitial lung disease or are under 18 years old may not benefit from this study.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with interstitial lung disease.
How similar studies have performed: Other studies utilizing patient registries for chronic diseases have shown success in advancing research and treatment options.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adult patients who are seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease * 18 years of age or older Exclusion Criteria: * N/A
Where this trial is running
Pittsburgh, Pennsylvania
- Michelle F MacPherson — Pittsburgh, Pennsylvania, United States (Recruiting)
Study contacts
- Principal investigator: Kevin F Gibson, MD — University of Pittsburgh - UPMC Simmons Center for Interstitial Lung Disease
- Study coordinator: Michelle F MacPherson, MAT
- Email: macphersonmj@upmc.edu
- Phone: 412-647-4537
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.