Registry for individuals with type 1 diabetes in Canada

Registry of Individuals With Type 1 Diabetes Living in Canada: The BETTER Registry

Observational Institut de Recherches Cliniques de Montreal · NCT03720197

This study is gathering information from people with type 1 diabetes in Canada to learn more about their experiences with low blood sugar episodes and how it affects their lives.

Quick facts

Study typeObservational
Enrollment6000 (estimated)
SexAll
SponsorInstitut de Recherches Cliniques de Montreal Academic / other
Locations7 sites (Edmonton, Alberta and 6 other locations)
Trial IDNCT03720197 on ClinicalTrials.gov

What this trial studies

This registry aims to gather comprehensive data on individuals living with type 1 diabetes in Canada, focusing on the frequency and severity of hypoglycemic episodes. Participants will complete questionnaires regarding their experiences with hypoglycemia, including symptoms, fears, and contributing factors such as insulin therapy and nutrition. The study is divided into three phases, with the first phase mandatory for all participants, while the subsequent phases are optional and involve additional data collection, including blood tests and lifestyle assessments. The goal is to create a detailed profile of the type 1 diabetes population in Canada and understand the implications of hypoglycemia.

Who should consider this trial

Good fit: Ideal candidates for this registry are individuals diagnosed with type 1 diabetes who reside in Canada.

Not a fit: Patients with type 2 diabetes or gestational diabetes will not benefit from this registry.

Why it matters

Potential benefit: If successful, this registry could enhance understanding of hypoglycemia in type 1 diabetes, leading to improved management strategies for patients.

How similar studies have performed: While similar registries have been established, this specific approach focusing on hypoglycemia in type 1 diabetes is relatively novel.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Diagnosis of type 1 diabetes
* Living in Canada

Exclusion Criteria:

* Type 2 diabetes
* Gestational diabetes

Where this trial is running

Edmonton, Alberta and 6 other locations

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Type 1 Diabetes Mellitus
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.