Clinical trial Recruiting at 1 site Observational Ages 18 and up

Registry for individuals interested in inherited cancer predisposition

Official title: Inherited CAncer REgistry (ICARE) Initiative

Run by Vanderbilt-Ingram Cancer Center · NCT03231891 · Data updated 2026-11-12

This study is looking for people who want to learn more about inherited cancer risks and participate in research to help improve understanding and education about cancer genetics.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment10000 (estimated)
SponsorVanderbilt-Ingram Cancer Center
Academic / other
Locations1 site (Nashville, Tennessee)
StatusRecruiting
StartedFebruary 27, 2017
Main results expectedDecember 2034
Study endsDecember 2035
Registry record updatedSeptember 16, 2025
Trial IDNCT03231891 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this registry are individuals aged 18 and older who are interested in inherited cancer predisposition.

Probably not a fit

Patients who are under 18 years of age or unable to provide informed consent may not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Inherited CAncer REgistry (ICARE) Initiative aims to enroll individuals who are interested in participating in studies related to inherited cancer predisposition. This observational registry collects data for various studies, including gene-specific research, and provides educational resources to participants and healthcare providers. Participants receive newsletters with updates on cancer genetics and can engage in monthly web-based case conferences led by experts in the field. The initiative fosters a collaborative environment for research and education in cancer genetics.

Why it matters

Potential benefit: If successful, this registry could enhance understanding of inherited cancer risks and improve patient outcomes through targeted research and education.

How similar studies have gone: Other similar registries have shown success in advancing research and understanding of genetic predispositions to cancer.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* At least 18 years of age
* Able and willing to provide informed consent

Where it's running

  • Vanderbilt-Ingram Cancer Center
    Nashville, Tennessee, United States
    Recruiting

Study contacts

  • Principal investigator: Tuya Pal, MD — Vanderbilt University Medical Center
  • Study coordinator: Anne Weidner, MPH
  • Email: ICARE@vumc.org
  • Phone: 615-875-2444

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.