Registry for individuals interested in inherited cancer predisposition
Official title: Inherited CAncer REgistry (ICARE) Initiative
Run by Vanderbilt-Ingram Cancer Center · NCT03231891 · Data updated 2026-11-12
This study is looking for people who want to learn more about inherited cancer risks and participate in research to help improve understanding and education about cancer genetics.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 10000 (estimated) |
| Sponsor | Vanderbilt-Ingram Cancer Center Academic / other |
| Locations | 1 site (Nashville, Tennessee) |
| Status | Recruiting |
| Started | February 27, 2017 |
| Main results expected | December 2034 |
| Study ends | December 2035 |
| Registry record updated | September 16, 2025 |
| Trial ID | NCT03231891 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are individuals aged 18 and older who are interested in inherited cancer predisposition.
✕Probably not a fit
Patients who are under 18 years of age or unable to provide informed consent may not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The Inherited CAncer REgistry (ICARE) Initiative aims to enroll individuals who are interested in participating in studies related to inherited cancer predisposition. This observational registry collects data for various studies, including gene-specific research, and provides educational resources to participants and healthcare providers. Participants receive newsletters with updates on cancer genetics and can engage in monthly web-based case conferences led by experts in the field. The initiative fosters a collaborative environment for research and education in cancer genetics.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of inherited cancer risks and improve patient outcomes through targeted research and education.
How similar studies have gone: Other similar registries have shown success in advancing research and understanding of genetic predispositions to cancer.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * At least 18 years of age * Able and willing to provide informed consent
Where it's running
-
Vanderbilt-Ingram Cancer Center
Nashville, Tennessee, United States Recruiting
Study contacts
- Principal investigator: Tuya Pal, MD — Vanderbilt University Medical Center
- Study coordinator: Anne Weidner, MPH
- Email: ICARE@vumc.org
- Phone: 615-875-2444
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.