Registry for adults with tic disorders
Official title: Adult Tic Disorders Registry
Run by Assistance Publique - Hôpitaux de Paris · NCT05090943 · Data updated 2026-11-12
This study is creating a registry for adults with tic disorders to see how tic severity affects their daily lives and to understand any differences between men and women.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 450 (estimated) |
| Sponsor | Assistance Publique - Hôpitaux de Paris Academic / other |
| Locations | 7 sites (Clermont-Ferrand and 6 other locations) |
| Status | Recruiting |
| Started | December 1, 2021 |
| Main results expected | December 1, 2027 |
| Study ends | December 1, 2027 |
| Registry record updated | September 4, 2025 |
| Trial ID | NCT05090943 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are adults over 18 years old diagnosed with tic disorders.
✕Probably not a fit
Patients without affiliation to French health social insurance or those with significant congenital disorders may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study aims to create a registry for adults with tic disorders to better understand the relationship between tic severity and the resulting impairment in both women and men. Participants will complete quality of life assessments to provide valuable data for analysis. The study focuses on characterizing differences in tic disorders based on gender, which may lead to improved understanding and management of these conditions.
Why it matters
Potential benefit: If successful, this registry could enhance the understanding of tic disorders and lead to better-targeted treatments for patients.
How similar studies have gone: While there may be similar registries, this specific focus on gender differences in tic disorders is relatively novel.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion criteria : 1. Age \>18 years 2. Patients with Tic disorders 3. Given the non-opposition Non Inclusion criteria 1. No affiliation to a French health social insurance 2. Significant congenital disorders that may affect understanding of assessments 3. Patients under guardianship or curatorship
Where it's running
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CHU Clermont-Ferrand
Clermont-Ferrand, France Recruiting -
CHU Limoges
Limoges, France Recruiting -
CHU Marseille
Marseille, France Recruiting -
Service de Neurologie, GH Pitié Salpêtrière
Paris, France Recruiting -
CHU Poitiers
Poitiers, France Recruiting -
CHU Nantes
Saint-Herblain, France Recruiting
Show 1 more location
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CHU Strasbourg
Strasbourg, France Recruiting
Study contacts
- Study coordinator: Emmanuel Flamand-Roze, MD, PhD
- Email: emmanuel.flamand-roze@aphp.fr
- Phone: 1 42 16 06 45
Similar studies
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Characterizing Repetitive Behaviors in OCD and Tic Disorders
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.