Registry for adrenal diseases in China
China Adrenal Disease Registry Study
This study is trying to create a better way to manage adrenal diseases in China by using an online health platform to help doctors diagnose and treat conditions like Cushing Syndrome and Congenital Adrenal Hyperplasia.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Ages | 16 Years to 75 Years |
| Sex | All |
| Sponsor | Shanghai Jiao Tong University School of Medicine Academic / other |
| Locations | 1 site (Shanghai) |
| Trial ID | NCT04890444 on ClinicalTrials.gov |
What this trial studies
This observational study aims to create a comprehensive management model for adrenal diseases in China by utilizing an Internet health information platform. It focuses on the diagnosis and treatment of conditions such as Cushing Syndrome, Aldosteronism, and Congenital Adrenal Hyperplasia. The study will establish a proprietary electronic medical database to facilitate big-data analysis for better understanding and management of adrenal diseases across multiple centers. By integrating online and offline care solutions, it seeks to improve patient outcomes and long-term follow-up.
Who should consider this trial
Good fit: Ideal candidates for this study are individuals aged 16 to 75 diagnosed with various adrenal associated diseases.
Not a fit: Patients with significantly reduced life expectancy or active infectious diseases may not benefit from this study.
Why it matters
Potential benefit: If successful, this initiative could lead to improved diagnosis and treatment strategies for patients with adrenal diseases.
How similar studies have performed: While similar approaches have been explored, this specific registry and management model for adrenal diseases in China is relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: 1. Age ≥ 16 years old and ≤ 75 years 2. Patients diagnosed with adrenal associated diseases, including cushing syndrome, primary aldosteronism, primary hypoadrenalism, congenital adrenal hyperplasia and adrenal adenomas, incidentalomas, and carcinomas, pheochromocytoma, etc. 3. Provide written informed consent 4. Satisfactory compliance Exclusion Criteria: 1. Patients with significantly reduced life expectancy (less than 2 years) 2. With Drug abuse 3. With AIDS or syphilis or infectious diseases such as viral tuberculosis in active phase at enrollment
Where this trial is running
Shanghai
- Endocrinology — Shanghai, China (Recruiting)
Study contacts
- Study coordinator: shouyue SUN, MD
- Email: ssy10926@rjh.com.cn
- Phone: 18121263206
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.