Registry collecting health information about Desmoplastic Small Round Cell Tumor
Registry for Patients With Desmoplastic Small Round Cell Tumor
This study is collecting health information from people with Desmoplastic Small Round Cell Tumor to help researchers learn more about the condition and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 250 (estimated) |
| Sex | All |
| Sponsor | Memorial Sloan Kettering Cancer Center Academic / other |
| Locations | 1 site (New York, New York) |
| Trial ID | NCT04690374 on ClinicalTrials.gov |
What this trial studies
This registry collects health information from individuals diagnosed with Desmoplastic Small Round Cell Tumor (DSRCT). The aim is to create a comprehensive database that enhances understanding of DSRCT and supports current and future research efforts. Participants of any age are encouraged to contribute their historical and longitudinal clinical data to aid in this initiative.
Who should consider this trial
Good fit: Ideal candidates are individuals diagnosed with Desmoplastic Small Round Cell Tumor who are willing to share their clinical data.
Not a fit: Patients who are unwilling to provide consent or share their clinical data may not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with DSRCT.
How similar studies have performed: While this registry approach is common, the specific focus on DSRCT may provide novel insights that have not been extensively explored in previous studies.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Participants must have a diagnosis of desmoplastic small round cell tumor * Participants may be of any age as long as the appropriate consent and assent may be obtained * Willing to provide historical and longitudinal clinical data Exclusion Criteria: * Participant unwilling to provide consent or share historical and longitudinal clinical data
Where this trial is running
New York, New York
- Memorial Sloan Kettering Cancer Center (All Protocol Activities) — New York, New York, United States (Recruiting)
Study contacts
- Principal investigator: Emily Slotkin, MD — Memorial Sloan Kettering Cancer Center
- Study coordinator: Emily Slotkin, MD
- Email: slotkine@mskcc.org
- Phone: 1-833-675-5437
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.