Clinical trial Recruiting at 1 site Observational

Registry and biobank for patients with pulmonary hypertension

Official title: Giessen Pulmonary Hypertension Registry and Biobank

Run by University of Giessen · NCT04145024 · Data updated 2026-11-12

This study is trying to see how long people with pulmonary hypertension can live without needing a transplant and what factors might affect their survival.

More Pulmonary Hypertension trials

Quick facts

Study typeObservational
SexAll
Enrollment10000 (estimated)
SponsorUniversity of Giessen
Academic / other
Locations1 site (Giessen)
StatusRecruiting
StartedJuly 1993
Main results expectedJuly 15, 2035
Study endsJanuary 15, 2036
Registry record updatedDecember 11, 2024
Trial IDNCT04145024 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are patients diagnosed with pulmonary hypertension confirmed by right heart catheterization.

Probably not a fit

Patients who are unable to provide informed consent will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to investigate long-term transplant-free survival and its determinants in patients diagnosed with pulmonary hypertension through right heart catheterization. It will collect data within a prospective registry at a single referral center in Giessen, Germany. The registry will help in understanding the progression of the disease and factors influencing patient outcomes over time.

Why it matters

Potential benefit: If successful, this study could provide valuable insights into the long-term management and survival of patients with pulmonary hypertension.

How similar studies have gone: While this approach is observational and may not be novel, similar registries have previously provided important data on patient outcomes in chronic conditions.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Right heart catheterization for PH diagnosis in Giessen

Exclusion Criteria:

* informed consent missing

Where it's running

  • Department of Intermal Medicine - Universities of Giessen and Marburg Lung Center
    Giessen, Germany
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.