Clinical trial Recruiting at 1 site Observational Ages 18 and up

Registry and biobank for adults with pulmonary hypertension

Official title: Prospective Registry and Biobank for Long-term Observational Studies in Adult Patients with Pulmonary Hypertension

Run by Universitätsklinikum Hamburg-Eppendorf · NCT04654650 · Data updated 2026-11-12

This study is collecting health information and samples from adults with pulmonary hypertension to learn more about the condition and how different treatments work over time.

More Pulmonary Hypertension trials

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment5000 (estimated)
SponsorUniversitätsklinikum Hamburg-Eppendorf
Academic / other
Locations1 site (Hamburg, Free and Hanseatic City of Hamburg)
StatusRecruiting
StartedJanuary 26, 2021
Main results expectedJanuary 25, 2041
Study endsJanuary 25, 2041
Registry record updatedDecember 20, 2024
Trial IDNCT04654650 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates are adults diagnosed with pulmonary hypertension classified in groups 1 to 5.

Probably not a fit

Patients who are unable to provide informed consent or choose to withdraw consent will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study involves creating a prospective registry and biobank for adult patients diagnosed with various groups of pulmonary hypertension. Participants will be enrolled and their body fluid samples will be collected at the start and during treatment with targeted therapies. The aim is to gather long-term observational data to better understand the condition and its treatment outcomes.

Why it matters

Potential benefit: If successful, this study could enhance the understanding of pulmonary hypertension and improve treatment strategies for patients.

How similar studies have gone: Other studies involving registries and biobanks for chronic conditions have shown success in improving patient outcomes and understanding disease progression.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Diagnosis of pulmonary hypertension group 1 to 5
* Ability to give informed consent

Exclusion Criteria:

\- Withdrawal of informed consent

Where it's running

  • Universitätsklinikum Hamburg-Eppendorf
    Hamburg, Free and Hanseatic City of Hamburg, Germany
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.