Online survey for family caregivers of dementia patients with swallowing difficulties
Influence of Swallowing Impairment on Burden Among Caregivers of Persons With Alzheimer's Disease and Related Dementias
This study is trying to understand the challenges family caregivers face when helping loved ones with dementia who have trouble swallowing, by asking them to fill out a short online survey.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 250 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | University of Oregon Academic / other |
| Locations | 1 site (Eugene, Oregon) |
| Trial ID | NCT06471660 on ClinicalTrials.gov |
What this trial studies
This observational study involves a one-time, 30-minute online survey aimed at family caregivers of individuals with dementia. The research focuses on understanding the burden caregivers face related to managing swallowing difficulties, known as dysphagia. By quantifying this burden and examining factors like caregiver readiness and support, the study seeks to inform the development of targeted interventions that enhance the quality of life for both caregivers and care recipients.
Who should consider this trial
Good fit: Ideal candidates are family caregivers of individuals with dementia who have been providing care for at least two months and live with the care recipient.
Not a fit: Patients who are not caregivers for a family member with dementia or who are compensated for their caregiving may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved support and interventions for family caregivers managing dysphagia in dementia patients.
How similar studies have performed: While this approach is focused on caregiver burden related to dysphagia, similar studies have shown success in understanding caregiver needs and developing supportive interventions.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Be a caregiver for a family member (or chosen family member) with dementia * Have been caregiving for at least 2 months * Live at home with the care recipient * Not be paid for the care provided * Be over the age of 18 * Live in the US Exclusion Criteria: * Not be a caregiver for a family member (or chosen family member) with dementia * Have been caregiving for less than 2 months * Not live at home with the care recipient * Be paid for the care provided * Be under the age of 18 * Live outside in the US
Where this trial is running
Eugene, Oregon
- Remote study offered by the University of Oregon — Eugene, Oregon, United States (Recruiting)
Study contacts
- Principal investigator: Samantha Shune — The University of Oregon
- Study coordinator: Samantha Shune
- Email: eatinglab@uoregon.edu
- Phone: 541-346-7494
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.