Observing sensory symptoms in Tourette syndrome
Official title: Sensory Symptoms in Tourette Syndrome
Run by Vanderbilt University Medical Center · NCT03851484 · Data updated 2026-11-12
This study looks at how sensory symptoms affect people with Tourette syndrome over time by having them fill out questionnaires about their experiences each year.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 214 (estimated) |
| Sponsor | Vanderbilt University Medical Center Academic / other |
| Locations | 2 sites (Nashville, Tennessee and 1 other locations) |
| Status | Recruiting |
| Started | April 17, 2019 |
| Main results expected | March 31, 2028 |
| Study ends | December 31, 2028 |
| Registry record updated | March 13, 2026 |
| Trial ID | NCT03851484 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are individuals aged 18 years and older with a diagnosis of Tourette syndrome or related chronic tic disorders.
✕Probably not a fit
Patients with a history of psychotic disorders or significant neurologic disorders other than Tourette syndrome may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study focuses on patients with Tourette syndrome and aims to assess the non-motor features associated with the condition over time. Participants will complete a series of validated questionnaires regarding their sensory experiences, premonitory urges, and other related symptoms annually. The study will stratify participants by age into late adolescents and adults to analyze variations in symptoms. The data collected will help in understanding the extent and impact of sensory dysregulation in individuals with Tourette syndrome.
Why it matters
Potential benefit: If successful, this study could enhance understanding of sensory symptoms in Tourette syndrome, leading to improved management strategies for patients.
How similar studies have gone: While there have been studies on Tourette syndrome, this specific focus on sensory symptoms and their longitudinal assessment is relatively novel.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion criteria: * 18 years of age or older * Ability to provide informed consent and answer self-report questionnaires independently in English * Diagnosis of Tourette syndrome (TS), chronic motor tic disorder, or chronic vocal tic disorder Exclusion criteria: * History of psychotic disorder * History of significant neurologic disorder (e.g., stroke) other than TS or another chronic tic disorder
Where it's running
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Vanderbilt University Medical Center
Nashville, Tennessee, United States Recruiting -
Vanderbilt University Medical Center
Nashville, Tennessee, United States Not yet recruiting
Study contacts
- Principal investigator: David A Isaacs, MD, MPH — Vanderbilt University Medical Center
- Study coordinator: Michelle Eckland, BS
- Email: michelle.r.eckland.1@vumc.org
- Phone: 615-875-7394
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.