National registry for children with Juvenile Idiopathic Arthritis in Canada

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The CAPRI National Juvenile Idiopathic Arthritis Registry collects longitudinal data on Canadian children diagnosed with Juvenile Idiopathic Arthritis (JIA) to better understand the disease's course, outcomes, and adverse events. This observational registry aims to inform healthcare decisions and improve treatment strategies by leveraging data from pediatric rheumatology experts across Canada. By tracking newly diagnosed patients and those from previous studies, the registry seeks to provide insights into the effectiveness of various treatment approaches and the overall prognosis for affected children.

Why it matters

Who can join: the full rules

Inclusion Criteria:

1. All patients newly diagnosed with JIA within the last 3 months
2. All patients who participated in the original ReACCh-Out study
3. LEAP study patients from 'newly diagnosed' and 'ReACCh-Out' cohorts who have completed their two year follow up in LEAP

Exclusion Criteria:

1. Patients with an unconfirmed JIA diagnosis
2. Patients diagnosed with JIA more than 3 months prior to the clinic visit, who were not followed in LEAP and /or ReACCh-Out studies.
3. If the family as a whole is unable to answer questionnaires in English or French

Where it's running

• University of Calgary / Alberta Children's Hospital
  Calgary, Alberta, Canada Recruiting
• University of Alberta
  Edmonton, Alberta, Canada Recruiting
• BC Children's Hospital
  Vancouver, British Columbia, Canada Recruiting
• University of Manitoba/Children's hospital research institute
  Winnipeg, Manitoba, Canada Recruiting
• Memorial University/Janeway Childrens Health and Rehabilitation Centre
  St. John's, Newfoundland and Labrador, Canada, Canada Recruiting
• IIWK Health Centre
  Halifax, Nova Scotia, Canada Recruiting

Study contacts

• Principal investigator: Adam Huber, MD — IIWK Health Centre, Halifax, Nova Scotia, Canada
• Study coordinator: Jaime Guzman, MD, FRCPC
• Email: jguzman@cw.bc.ca
• Phone: 604-875-2437

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Predicting the course of early-onset juvenile idiopathic arthritis using a multidimensional model

  Researchers are testing a comprehensive model to predict how early-onset JIA will progress in affected children and how a small control group with iridocyclitis compares.

  Recruiting at 2 sites Istituto Giannina Gaslini · Genova and 1 other locations · NCT07882667

• Understanding subtypes of chronic musculoskeletal pain in youth

  This observational study tests whether distinct brain and immune profiles can explain chronic musculoskeletal pain in teens and young adults to guide more precise treatments.

  Recruiting Children's Hospital Medical Center, Cincinnati · Cincinnati, Ohio · NCT07602595

• Open-label extension with filgotinib for juvenile idiopathic arthritis

  This long-term open-label extension sees if filgotinib stays safe and continues to control symptoms in children aged 8–17 with polyarticular or systemic juvenile idiopathic arthritis who benefited from earlier treatment.

  Recruiting at 2 sites Phase 3 Alfasigma S.p.A. · Le Kremlin-Bicêtre and 3 other locations · NCT07553182

• Structured or video-game–based core stabilization for children with juvenile idiopathic arthritis

  This study will try whether a regular structured core exercise program or a fun exergaming-based core program helps children aged 8–13 with juvenile idiopathic arthritis improve strength, reduce pain, and move better.

  Recruiting Istanbul University - Cerrahpasa · Istanbul, Buyukcekmece · NCT07234747

• Tofacitinib in Juvenile Idiopathic Arthritis

  This study looks at real-world use of tofacitinib to see if it helps control Juvenile Idiopathic Arthritis in kids over about 12 months.

  Recruiting at 7 sites Consorci Sanitari de l'Alt Penedès i Garraf · A Coruña, A Coruña and 6 other locations · NCT07211932

• Parents' pain catastrophizing in children with juvenile idiopathic arthritis

  See if parents' worrying and negative thoughts about their child's pain are linked to treatment adherence and biopsychosocial outcomes in children with juvenile idiopathic arthritis.

  Recruiting Hacettepe University · Çankaya, Ankara · NCT07185750

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.