Monitoring prostate health in men with high genetic risk for prostate cancer

Natural History Study of Men at High Genetic Risk for Prostate Cancer

Observational National Institutes of Health Clinical Center (CC) · NCT03805919

This study is trying to see how the prostate health of men aged 30-75 with certain genetic changes linked to a higher risk of prostate cancer changes over time.

Quick facts

Study typeObservational
Enrollment500 (estimated)
Ages30 Years to 75 Years
SexMale
SponsorNational Institutes of Health Clinical Center (CC) NIH
Locations1 site (Bethesda, Maryland)
Trial IDNCT03805919 on ClinicalTrials.gov

What this trial studies

This observational study aims to follow the prostate health of men aged 30-75 who have specific genetic changes associated with an increased risk of prostate cancer. Participants must have documented germline variants in genes such as BRCA1, BRCA2, and MMR genes linked to Lynch syndrome. The study will involve blood sampling for prostate-specific antigen and MRI evaluations to monitor prostate health over time. The goal is to better understand which genetic factors contribute to higher prostate cancer risk and how they can inform prevention and treatment strategies.

Who should consider this trial

Good fit: Ideal candidates are males aged 30-75 with documented germline variants in prostate cancer-related risk genes.

Not a fit: Patients who have already been diagnosed or treated for prostate cancer will not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved screening and preventive measures for men at high genetic risk for prostate cancer.

How similar studies have performed: Other studies have shown success in targeting high-risk populations based on genetic predisposition, making this approach promising.

Eligibility criteria

Show full inclusion / exclusion criteria
* Inclusion Criteria:
* Males between ages 30-75 years old.
* Documented germline variant (i.e. pathogenic/likely pathogenic variant) in prostate cancer risk-related gene from a CLIA certified laboratory: BRCA1 and BRCA2, MMR genes (MLH1, MSH2, MSH6, PMS2, and EPCAM) associated with Lynch syndrome, as well as HOXB13, ATM, NBN, TP53, CHEK2, PALB2, RAD51C, RAD51D, BRIP1, or FANC (FANCA, FANCB, FANCC, FANCD2, FANCE, FANCF, FANCG, FANCI, FANCL, and FANCM).
* Prognosis of \>5 years survival if affected by another cancer
* Ability of subject to understand and the willingness to sign a written informed consent document

Exclusion Criteria:

* Prior diagnosis or treatment for prostate cancer
* Known contraindication to MRI:

  * Participants unable to fit through MRI scanner (radiologist discretion)
  * Allergy to MR contrast agent
  * Participants with pacemakers, cerebral aneurysm clips, shrapnel injury, or implantable electronic device
* Active concomitant medical or psychological illnesses that may increase the risk to the subject or inability to obtain informed consent, at the discretion of the principal investigator.

Where this trial is running

Bethesda, Maryland

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Prostatic NeoplasmsBRCA 1BRCA 2MMR genesLynch SyndromeNatural History
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.