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Long-term follow-up for childhood cancer survivors

Umbrella Long-Term Follow-Up Protocol

Observational Children's Oncology Group · NCT00736749

This study is trying to keep in touch with childhood cancer survivors to see how they are doing over time and understand the long-term effects of their treatments.

Quick facts

Study typeObservational
Enrollment5000 (estimated)
SexAll
SponsorChildren's Oncology Group Research network
Locations164 sites (Birmingham, Alabama and 163 other locations)
Trial IDNCT00736749 on ClinicalTrials.gov

What this trial studies

This observational study aims to track and collect follow-up information from patients who have participated in Children's Oncology Group studies. It focuses on maintaining lifetime contact with these patients to gather updates on their health status and quality of life. The study also seeks to locate patients who have become lost to follow-up and provide their current information to relevant institutions. By developing a systematic approach to long-term follow-up, the study hopes to enhance understanding of the long-term effects of cancer treatments.

Who should consider this trial

Good fit: Ideal candidates for this study are individuals who have previously participated in Children's Oncology Group studies and currently reside in the U.S.

Not a fit: Patients who have not participated in Children's Oncology Group studies or do not reside in the U.S. may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could improve the quality of life for childhood cancer survivors by identifying and addressing long-term treatment effects.

How similar studies have performed: Other studies focusing on long-term follow-up of cancer survivors have shown success in improving patient outcomes and understanding treatment effects.

Eligibility criteria

Show full inclusion / exclusion criteria 
Inclusion Criteria:

* The patient must reside in the U.S. on the date of enrollment to ALTE05N1
* All patients and/or their parents or legal guardians must sign a written informed consent
* All institutional, Food and Drug Administration (FDA), and National Cancer Institute (NCI) requirements for human studies must be met

Where this trial is running

Birmingham, Alabama and 163 other locations

+114 more sites — see ClinicalTrials.gov for the full list.

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
View on ClinicalTrials.gov → Find more trials like this →
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Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.