Investigating long-term effects of childhood cancer on survivors
Official title: Swiss Childhood Cancer Survivor Study (SCCSS)
Run by University of Bern · NCT03297034 · Data updated 2026-11-12
This study is trying to learn about the long-term health and quality of life of people who survived childhood cancer to help improve their care as they grow older.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 5 Years and up |
| Sex | All |
| Enrollment | 4136 (estimated) |
| Sponsor | University of Bern Academic / other |
| Locations | 1 site (Bern, Canton of Bern) |
| Status | Recruiting |
| Started | January 1, 2007 |
| Main results expected | January 2050 |
| Study ends | January 2050 |
| Registry record updated | June 29, 2026 |
| Trial ID | NCT03297034 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are Swiss residents who were diagnosed with cancer before the age of 20 and have survived for at least five years post-diagnosis.
✕Probably not a fit
Patients who were diagnosed with cancer after the age of 20 or who have not survived at least five years since their diagnosis may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The Swiss Childhood Cancer Survivor Study (SCCSS) aims to explore the long-term health outcomes and quality of life of childhood cancer survivors who were diagnosed before the age of 20. By sending detailed questionnaires to these survivors, the study gathers information on various health issues, healthcare received, and psychosocial factors. It also collects demographic data to better understand the impact of childhood cancer and its treatment on survivors' lives. The findings will help inform healthcare providers and improve follow-up care for this growing population.
Why it matters
Potential benefit: If successful, this study could lead to improved healthcare strategies and support for childhood cancer survivors, enhancing their quality of life.
How similar studies have gone: Other studies have shown success in understanding the long-term effects of childhood cancer, making this approach both relevant and necessary.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Who were diagnosed with cancer at age \<20 years * Who have survived at least 5 years after cancer diagnosis * Who were Swiss residents when they were diagnosed, and * Who gave informed consent
Where it's running
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Institute of Social and Preventive Medicine (ISPM), University of Bern
Bern, Canton of Bern, Switzerland Recruiting
Study contacts
- Study coordinator: Claudia E Kuehni, Prof.
- Email: claudia.kuehni@unibe.ch
- Phone: +41 (0)31 631 35 07
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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Community-led, family-centered communication for Hispanic childhood cancer survivors
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At-home light therapy for chemo-related nerve pain in childhood cancer survivors
This study tests whether a six-week at-home light therapy program can help childhood cancer survivors who have chemotherapy-induced peripheral neuropathy.
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Understanding the needs of siblings of children with cancer
This study looks at the emotional struggles of siblings of kids with cancer to see how they feel and what support they need during this tough time.
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Cognitively engaging exercise to boost thinking skills in children and teens with cancer
This trial tests whether mentally challenging physical activity can improve thinking skills and self-control (executive functions) in children and adolescents undergoing cancer treatment.
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This study is trying to see how cancer treatment affects muscle strength and function in survivors of childhood leukemia compared to healthy kids.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.