Clinical trial Recruiting at 1 site Observational Ages 5 and up

Investigating long-term effects of childhood cancer on survivors

Official title: Swiss Childhood Cancer Survivor Study (SCCSS)

Run by University of Bern · NCT03297034 · Data updated 2026-11-12

This study is trying to learn about the long-term health and quality of life of people who survived childhood cancer to help improve their care as they grow older.

More Childhood Cancer trials

Quick facts

Study typeObservational
Ages5 Years and up
SexAll
Enrollment4136 (estimated)
SponsorUniversity of Bern
Academic / other
Locations1 site (Bern, Canton of Bern)
StatusRecruiting
StartedJanuary 1, 2007
Main results expectedJanuary 2050
Study endsJanuary 2050
Registry record updatedJune 29, 2026
Trial IDNCT03297034 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are Swiss residents who were diagnosed with cancer before the age of 20 and have survived for at least five years post-diagnosis.

Probably not a fit

Patients who were diagnosed with cancer after the age of 20 or who have not survived at least five years since their diagnosis may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Swiss Childhood Cancer Survivor Study (SCCSS) aims to explore the long-term health outcomes and quality of life of childhood cancer survivors who were diagnosed before the age of 20. By sending detailed questionnaires to these survivors, the study gathers information on various health issues, healthcare received, and psychosocial factors. It also collects demographic data to better understand the impact of childhood cancer and its treatment on survivors' lives. The findings will help inform healthcare providers and improve follow-up care for this growing population.

Why it matters

Potential benefit: If successful, this study could lead to improved healthcare strategies and support for childhood cancer survivors, enhancing their quality of life.

How similar studies have gone: Other studies have shown success in understanding the long-term effects of childhood cancer, making this approach both relevant and necessary.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Who were diagnosed with cancer at age \<20 years
* Who have survived at least 5 years after cancer diagnosis
* Who were Swiss residents when they were diagnosed, and
* Who gave informed consent

Where it's running

  • Institute of Social and Preventive Medicine (ISPM), University of Bern
    Bern, Canton of Bern, Switzerland
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.