Investigating long-term effects of childhood cancer on survivors
Swiss Childhood Cancer Survivor Study (SCCSS)
This study is trying to learn about the long-term health and quality of life of people who survived childhood cancer to help improve their care as they grow older.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 4076 (estimated) |
| Ages | 5 Years and up |
| Sex | All |
| Sponsor | University of Bern Academic / other |
| Locations | 1 site (Bern) |
| Trial ID | NCT03297034 on ClinicalTrials.gov |
What this trial studies
The Swiss Childhood Cancer Survivor Study (SCCSS) aims to explore the long-term health outcomes and quality of life of childhood cancer survivors who were diagnosed before the age of 20. By sending detailed questionnaires to these survivors, the study gathers information on various health issues, healthcare received, and psychosocial factors. It also collects demographic data to better understand the impact of childhood cancer and its treatment on survivors' lives. The findings will help inform healthcare providers and improve follow-up care for this growing population.
Who should consider this trial
Good fit: Ideal candidates for this study are Swiss residents who were diagnosed with cancer before the age of 20 and have survived for at least five years post-diagnosis.
Not a fit: Patients who were diagnosed with cancer after the age of 20 or who have not survived at least five years since their diagnosis may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved healthcare strategies and support for childhood cancer survivors, enhancing their quality of life.
How similar studies have performed: Other studies have shown success in understanding the long-term effects of childhood cancer, making this approach both relevant and necessary.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Who were diagnosed with cancer at age \<20 years * Who have survived at least 5 years after cancer diagnosis * Who were Swiss residents when they were diagnosed, and * Who gave informed consent
Where this trial is running
Bern
- Institute of Social and Preventive Medicine (ISPM), University of Bern — Bern, Switzerland (Recruiting)
Study contacts
- Study coordinator: Claudia E Kuehni, Prof.
- Email: claudia.kuehni@unibe.ch
- Phone: +41 (0)31 631 35 07
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.