Impact of Leukemia and Lymphoma Society services on blood cancer patients

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to evaluate how the services and programs offered by the Leukemia and Lymphoma Society (LLS) affect patients with blood cancers, including leukemia, lymphoma, myeloma, myelodysplastic syndromes, and myeloproliferative neoplasms. It focuses on aspects such as access to care, quality of life, and financial burdens faced by these patients. Participants will be followed for six months to assess the impact of LLS programs on their treatment experience and unmet needs.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Be diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN).
* Have received, be receiving, or be planning to receive primary or relapse treatment for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN) and meet at least one of the following criteria:

  * Be currently receiving treatment which started within the past 18 months OR
  * Be planning to start treatment within one month OR
  * Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days.
* Not be currently participating in any LLS programs or services
* Be willing to be followed for 6 months
* Speak English or Spanish

Exclusion Criteria:

* Are not diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)
* Do not meet at least one of the following criteria if treated or planning to get treated for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN):

  * Be currently receiving treatment which started within the past 18 months OR
  * Be planning to start treatment within one month OR
  * Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days.
* Are currently participating in any LLS programs or services
* Are not willing to be followed for 6 months
* Do not speak English or Spanish.

Where it's running

• Sylvester Comprehensive Cancer Center
  Miami, Florida, United States Recruiting
• University of Chicago Comprehensive Cancer Center
  Chicago, Illinois, United States Not yet recruiting
• Mays Cancer Center at UT Health San Antonio
  San Antonio, Texas, United States Not yet recruiting

Study contacts

• Principal investigator: Frank Penedo, PhD — University of Miami
• Study coordinator: Carlos Melara, MD
• Email: cam32407@med.miami.edu
• Phone: 3052438300

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.