Impact of Adult Day Programs on Dementia Patients and Their Caregivers
Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers (AIDA-DemCare)
This study is trying to see how attending adult day programs affects the well-being of people with dementia and their family caregivers compared to those who don’t attend these programs.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 3000 (estimated) |
| Ages | 65 Years and up |
| Sex | All |
| Sponsor | York University Academic / other |
| Locations | 4 sites (Edmonton & Calgary, Alberta and 3 other locations) |
| Trial ID | NCT06496945 on ClinicalTrials.gov |
What this trial studies
This observational study aims to evaluate the effects of adult day programs on older adults living with dementia and their family caregivers across four Canadian provinces. It will involve two cohorts: one of older adults with dementia who attend a day program and their caregivers, and another of those who do not attend such programs. The study will assess various outcomes, including quality of life, mental health, and the timing of admissions to congregate care facilities. Additionally, it will explore the characteristics of day programs and the social identities of attendees and caregivers to understand their association with the outcomes.
Who should consider this trial
Good fit: Ideal candidates include older adults aged 65 and above with a diagnosis of dementia living in the community, along with their primary caregivers.
Not a fit: Patients who do not have a diagnosis of dementia or are younger than 65 years will not benefit from this study.
Why it matters
Potential benefit: If successful, this study could enhance the quality of life for dementia patients and their caregivers by identifying effective community support strategies.
How similar studies have performed: While there is inconsistent research on the effectiveness of adult day programs, this study aims to fill a gap in Canadian research and may provide new insights into their impact.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Older adults (65+ years) with a diagnosis of dementia, who live in the community, and either attend an adult day program (cohort 1), or receive continuing care in the community with an initial RAI-HC assessment completed (cohort 2) * Primary caregiver (i.e., most involved with and informed about the care) of an eligible older adult Exclusion Criteria: * Older adults with or without dementia who do not receive any community-based continuing care service * Day program attendees or community care recipients who do not have a diagnosis of dementia or who are younger than 65 years * Secondary caregivers
Where this trial is running
Edmonton & Calgary, Alberta and 3 other locations
- Edmonton and Calgary Health Zones — Edmonton & Calgary, Alberta, Canada (Not_yet_recruiting)
- Interior Health Region — Multiple, British Columbia, Canada (Not_yet_recruiting)
- Winnipeg Regional Health Authority — Winnipeg, Manitoba, Canada (Not_yet_recruiting)
- York Region — Multiple, Ontario, Canada (Recruiting)
Study contacts
- Principal investigator: Matthias Hoben, Dr rer medic — York University
- Study coordinator: Matthias Hoben, Dr rer medic
- Email: mhoben@yorku.ca
- Phone: +1 437-335-1338
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.