How teens and young adults with cancer want to be involved in treatment decisions
Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
This project tests how adolescents and young adults (ages 15–29) prefer to be involved in cancer treatment decisions by asking them to read short scenarios and answer questions.
Quick facts
| Phase | Not applicable |
|---|---|
| Study type | Interventional |
| Enrollment | 100 (estimated) |
| Ages | 15 Years to 29 Years |
| Sex | All |
| Sponsor | Stanford University Academic / other |
| Locations | 1 site (Palo Alto, California) |
| Trial ID | NCT07035418 on ClinicalTrials.gov |
What this trial studies
This mixed-methods project enrolls adolescents and young adults aged 15–29 who have a current or recent cancer diagnosis, including those on therapy, at end of life, or within one year after treatment. Participants complete vignette-based clinical decision-making scenarios and preference assessments, alongside questionnaires or interviews to collect demographic and psychosocial factors. The study links participants' responses to variables associated with treatment decision-making preferences. All activities are conducted in English at Stanford University and exclude individuals with developmental delays that prevent participation.
Who should consider this trial
Good fit: Ideal candidates are English-speaking adolescents and young adults aged 15–29 with a cancer diagnosis (on treatment, end of life, or within one year post-treatment) who are cognitively and physically able to participate.
Not a fit: People who cannot read or speak English, have developmental disorders that prevent participation, or do not want to engage with decision-making scenarios are unlikely to benefit from this project.
Why it matters
Potential benefit: If successful, the findings could help clinicians tailor conversations and decision-making processes to match young patients' preferences, improving satisfaction and care.
How similar studies have performed: Previous vignette- and questionnaire-based research has produced informative, variable results about AYA decision preferences, so this approach builds on established methods rather than testing a novel treatment.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Age (15-29 years) * Cancer diagnosis and on therapy, end-of-life or survivors (within 1 year) * Speaks English * Reads English * Cognitively and physically able to participate Exclusion Criteria: * Unable to participate in study due to developmental delay or developmental disorder
Where this trial is running
Palo Alto, California
- Stanford University — Palo Alto, California, United States (Recruiting)
Study contacts
- Principal investigator: Kimberly Pyke-Grimm — Stanford University
- Study coordinator: Swathi Alagandula
- Email: drswathi@stanford.edu
- Phone: 650-725-1976
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.