Helping East Asian immigrants discuss advance care planning
Development of a Culturally Tailored Digital Resilience-Building Intervention for East Asian Immigrants With Cancer to Facilitate Advance Care Planning Discussions
This study is testing a new online tool to help East Asian immigrants with cancer talk about their end-of-life care wishes with their family caregivers.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 84 (estimated) |
| Ages | 18 Years to 80 Years |
| Sex | All |
| Sponsor | University of Illinois at Chicago Academic / other |
| Locations | 1 site (Chicago, Illinois) |
| Trial ID | NCT06035549 on ClinicalTrials.gov |
What this trial studies
This study aims to create a culturally tailored digital intervention to assist East Asian immigrants in engaging in advance care planning discussions with their family caregivers. It addresses the low rates of advance directive completion among East Asian Americans by identifying barriers and facilitators through interviews with religious leaders and developing a digital resilience-building tool. The intervention will be tested with pairs of East Asian immigrants with cancer and their caregivers to enhance communication about end-of-life care preferences.
Who should consider this trial
Good fit: Ideal candidates include East Asian immigrants aged 18 and older with a cancer diagnosis who can communicate in English, Mandarin, Cantonese, Japanese, or Korean.
Not a fit: Patients who have completed an advance directive or have cognitive impairments may not benefit from this study.
Why it matters
Potential benefit: If successful, this intervention could significantly improve advance care planning discussions and outcomes for East Asian immigrants facing cancer.
How similar studies have performed: While there is limited research specifically targeting this demographic, similar culturally tailored interventions have shown promise in improving health communication and decision-making in other populations.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria for Religious Leaders: * Age ≥ 18 years * Serving as a chaplain or religious leader at a healthcare setting or religious organization * Having experience providing pastoral or spiritual care to Chinese, Japanese, and Korean Americans in the US * Being able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean. Exclusion criteria: Not willing to provide consent. Inclusion Criteria for Patients: * Age ≥ 18 years * Having a cancer diagnosis * Likely self-identifying as a Chinese, Japanese, or Korean American/immigrant * Being able to read and respond to questions in either English, Mandarin, Japanese, Korean, or Chinese dialects, such as Cantonese, Shanghai, Taishanese, or Taiwanese. Exclusion Criteria for Patients: * Having cognitive impairment per the Short Portable Mental Status Questionnaire with more than three errors Inclusion Criteria for Family Caregivers: * Age ≥ 18 years * Being able to read and respond to questions in either English, Mandarin, Japanese, Korean, or Chinese dialects, such as Cantonese, Shanghai, Taishanese, or Taiwanese * Having a family member who is likely to self-identify as a Chinese, Japanese, or Korean American/immigrant and has been diagnosed with cancer
Where this trial is running
Chicago, Illinois
- University of Illinois Chicago — Chicago, Illinois, United States (Recruiting)
Study contacts
- Principal investigator: Li-Ting H. Longcoy — University of Illinois Chicago College of Nursing
- Study coordinator: Li-Ting H. Longcoy
- Email: liting@uic.edu
- Phone: 312-996-3024
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.