Global health study on hidradenitis suppurativa
Official title: Global Healthcare Study on Hidradenitis Suppurativa
Run by University of Zurich · NCT07659769 · Data updated 2026-11-12
This study tests how people with hidradenitis suppurativa access care and what treatments they receive across different health systems.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 14 Years and up |
| Sex | All |
| Enrollment | 9600 (estimated) |
| Sponsor | University of Zurich Academic / other |
| Locations | 1 site (Zurich) |
| Status | Recruiting |
| Started | January 1, 2025 |
| Main results expected | December 31, 2029 |
| Study ends | December 31, 2029 |
| Registry record updated | September 28, 2026 |
| Trial ID | NCT07659769 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Individuals with a confirmed hidradenitis suppurativa diagnosis who can provide consent or have a consent document on file.
✕Probably not a fit
Patients whose data cannot be linked to a care record or who cannot provide informed consent may not directly benefit.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
GHSHS is an international, multicenter observational study led by the University of Zurich to examine healthcare access, treatment patterns, disease severity, and quality of life in people with hidradenitis suppurativa. It uses a combined retrospective and prospective design, gathering standardized data from routine medical records from 2020 onward. The goal is to identify disparities in care and outcomes across healthcare settings. Data are collected from routine clinical care to reflect real-world practice without assigning any experimental interventions.
Why it matters
Potential benefit: Findings could help healthcare systems improve access to appropriate care and optimize outcomes for people with hidradenitis suppurativa.
How similar studies have gone: Previous observational studies have demonstrated value in identifying care disparities and guiding quality improvements, though this exact approach is similar in design to prior work but may address different health-system contexts.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Signed General Consent Form, or equivalent document * Confirmed diagnosis of Hidradenitis Suppurativa Exclusion Criteria: * Inability to provide informed consent. * Datasets with ambiguous or unclear diagnosis.
Where it's running
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University of Zurich
Zurich, Switzerland Recruiting
Study contacts
- Principal investigator: Julia-Tatjana Maul, Prof. Dr. med. — University of Zurich
- Study coordinator: Julia-Tatjana Maul, Prof. Dr. med.
- Email: julia-tatjana.maul@usz.ch
- Phone: +41 76 441 51 09
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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Evaluating secukinumab's effectiveness with surgery for hidradenitis suppurativa
This study is testing if using secukinumab along with surgery can help people with moderate to severe hidradenitis suppurativa feel better and have fewer problems after surgery.
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Soquelitinib in adults with hidradenitis suppurativa
This study tests whether oral soquelitinib can help adults with moderate-to-severe hidradenitis suppurativa.
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ORKA-002 versus placebo for moderate-to-severe hidradenitis suppurativa
A study tests ORKA-002 against placebo in adults with moderate-to-severe hidradenitis suppurativa to see if it helps reduce symptoms.
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SPY072 in adults with moderate to severe hidradenitis suppurativa
This study tests whether SPY072 can help adults with moderate to severe hidradenitis suppurativa when added to their current care, compared with a placebo over 16 weeks.
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Brain activity patterns in people with hidradenitis suppurativa and how treatments may relate to changes
This study tests whether adults with hidradenitis suppurativa show different resting brain activity than healthy people and whether these brain patterns relate to symptoms like pain and mood, and whether they change after 3 months of standard biologic or small-molecule treatment.
-
Roflumilast 0.3% Foam for Hidradenitis Suppurativa in Teens and Adults
This study tests a topical roflumilast foam to see if it improves HS in adolescents and adults over 16 weeks.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.