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Global assessment of disease burden in adolescents and adults with alopecia areata, vitiligo, or hidradenitis suppurativa

Multi-Country, Cross-sectional Study to Characterize Real World Burden of Disease in Adolescent and Adult Patients With Alopecia Areata, Vitiligo or Hidradenitis Suppurativa (MEASURE AAVitHS)

Observational AbbVie · NCT07136467

This project will see if collecting real-world information from adolescents and adults with moderate or severe alopecia areata, non-segmental vitiligo, or hidradenitis suppurativa can describe their disease burden worldwide.

Quick facts

Study typeObservational
Enrollment2795 (estimated)
Ages12 Years and up
SexAll
SponsorAbbVie Industry-sponsored
Locations116 sites (Ciudad Autonoma de Buenos Aire, Buenos Aires and 115 other locations)
Trial IDNCT07136467 on ClinicalTrials.gov

What this trial studies

This observational, non-interventional study will collect real-world clinical data and patient-reported outcomes from adolescents and adults with physician-confirmed non-segmental vitiligo, moderate-to-severe alopecia areata, or moderate-to-severe hidradenitis suppurativa. Participants will complete questionnaires (with caregiver support allowed for adolescents) and undergo routine clinical assessments at participating sites. Individuals currently enrolled in interventional clinical trials are excluded, though participation in other non-interventional registries is permitted. Data will be pooled across enrolling centers to characterize regional and severity-related differences in disease burden.

Who should consider this trial

Good fit: Adolescents and adults with physician-confirmed non-segmental vitiligo, moderate-to-severe alopecia areata, or moderate-to-severe hidradenitis suppurativa who can complete questionnaires (with caregiver help for adolescents) and are not in an interventional clinical trial.

Not a fit: Patients currently enrolled in an interventional clinical trial or those unable or unwilling to complete patient-reported outcome questionnaires are unlikely to benefit from participation.

Why it matters

Potential benefit: If successful, the study could provide a clearer picture of real-world patient burden and unmet needs, helping clinicians and policymakers improve care and support services.

How similar studies have performed: Similar real-world observational studies in dermatology have successfully described disease burden and informed care priorities, though they do not test new therapies directly.

Eligibility criteria

Show full inclusion / exclusion criteria 
Inclusion Criteria:

* Participants with Physician-confirmed diagnosis of non-segmental vitiligo (NSV), moderate to severe Alopecia Areata (AA), or moderate to severe hidradenitis suppurativa (HS)
* Participants Ability to understand study questionnaires, with caregiver support as required for adolescents

Exclusion Criteria:

* Participating in interventional clinical trial(s) at time of study visit (participation in another non-interventional study or registry does not exclude a participant from this study)
* Unable or unwilling to comply with study requirements and PRO collection

Where this trial is running

Ciudad Autonoma de Buenos Aire, Buenos Aires and 115 other locations

+66 more sites — see ClinicalTrials.gov for the full list.

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
View on ClinicalTrials.gov → Find more trials like this →
Conditions Non-Segmental VitiligoAlopecia AreataHidradenitis Suppurativa
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.