Exploring ICU patients' experiences and end-of-life wishes
Official title: Intensive Care Decision-making, Survival and Dying Well: How do the Experiences of Intensive Care Patients and Their End-of-life Wishes Affect Their Willingness to Accept Intensive Care Treatment at Different Chances of Survival?
Run by University of Manchester · NCT06027684 · Data updated 2026-11-12
This study is trying to understand how patients in intensive care feel about their treatment and what their wishes are for end-of-life care to help improve future ICU experiences.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 50 (estimated) |
| Sponsor | University of Manchester Academic / other |
| Locations | 1 site (Manchester) |
| Status | Recruiting |
| Started | October 2, 2023 |
| Main results expected | September 30, 2025 |
| Study ends | December 31, 2025 |
| Registry record updated | January 16, 2025 |
| Trial ID | NCT06027684 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are individuals aged 18 and older who have previously been patients in an intensive care unit and are willing to discuss their experiences and preferences.
✕Probably not a fit
Patients who are under 18, have had planned ICU admissions, cannot consent, or face significant language barriers may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study investigates how the experiences of patients in intensive care units (ICUs) and their end-of-life preferences influence their willingness to accept ICU treatment under varying chances of survival. It aims to understand the reflections of ICU survivors regarding their treatment experiences and how these relate to their preferences for end-of-life care. Participants will complete a questionnaire and engage in discussions about their experiences, focusing on the emotional and psychological aspects of ICU treatment. The study addresses the increasing demand for ICU care among elderly patients with low survival chances and seeks to shed light on the distressing experiences reported by ICU survivors.
Why it matters
Potential benefit: If successful, this study could improve decision-making processes for ICU treatment and enhance end-of-life care for critically ill patients.
How similar studies have gone: While this study addresses a critical area of patient experience in ICU settings, similar studies have highlighted the distressing experiences of ICU patients, suggesting that this approach is both relevant and necessary.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * The principle inclusion criteria are being 18 years or older and having previously been a patient on an intensive care/critical care unit in the past. * Being willing to talk about experiences of intensive care treatment, end-of-life wishes, and the context (chances of survival/functional decline) which would make intensive care treatments acceptable and being willing to either meet in person or have access to a computer, tablet or mobile phone with video and a stable internet connection (for a Zoom conversation) are also inclusion criteria. Exclusion Criteria: * The exclusion criteria are being under the age of 18, having had a planned admission to an intensive care/critical care unit (e.g. after an elective operation), being unable to consent to participate in the research and having a significant language barrier (as there is no available funding to pay for translation).
Where it's running
-
University of Manchester
Manchester, United Kingdom Recruiting
Study contacts
- Principal investigator: Thomas M Donaldson, MB/BChir — University of Manchester
- Study coordinator: Thomas M Donaldson, MB/BChir
- Email: thomas.donaldson-2@postgrad.manchester.ac.uk
- Phone: 07737298024
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.