Exploring genetic causes of ALS in Norway

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to investigate the genetic factors associated with the development of Amyotrophic Lateral Sclerosis (ALS) in Norway. Participants diagnosed with probable or definite ALS will complete a questionnaire about their family history and provide a blood sample for genetic analysis. The collected data, including clinical information and consent forms, will be sent to the Department of Medical Genetics at Telemark Hospital Trust for analysis. Patients will have the option to receive their genetic results in a diagnostic context.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Probable or definite ALS
* Eligible to consent

Exclusion Criteria:

\- not competent to give consent

Where it's running

• Haukeland University Hospital, Department of Neurology
  Bergen, Norway Recruiting
• Nordland Hospital Trust, Department of Neurology
  Bodø, Norway Recruiting
• Vestre Viken Hospital Trust, Department of Neurology
  Drammen, Norway Recruiting
• Førde Hospital Trust, Department of Neurology
  Førde, Norway Recruiting
• Østfold Hospital Trust, Department of Neurology
  Grålum, Norway Recruiting
• Fonna Hospital Trust, Department of Neurology
  Haugesund, Norway Recruiting

Study contacts

• Principal investigator: Helle Høyer — Telemark Hospital Trust, Norway
• Study coordinator: Helle Høyer
• Email: helle.hoyer@sthf.no
• Phone: 35003146

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.