Evaluating the prevalence of transthyretin amyloidosis in heart failure patients

Prevalence and Prediction of Transthyretin Amyloidosis in Ambulatory Patients With Heart Failure With Preserved Ejection Fraction

Not applicable Interventional Massachusetts General Hospital · NCT05577819

This study is trying to find out how common transthyretin amyloidosis is in older heart failure patients to help catch it early for better treatment.

Quick facts

PhaseNot applicable
Study typeInterventional
Enrollment515 (estimated)
Ages65 Years and up
SexAll
SponsorMassachusetts General Hospital Academic / other
Locations1 site (Boston, Massachusetts)
Trial IDNCT05577819 on ClinicalTrials.gov

What this trial studies

This study aims to assess how often transthyretin amyloidosis (ATTR) occurs in patients aged 65 and older with heart failure with preserved ejection fraction (HFpEF). Participants will undergo a 99mTc-pyrophosphate SPECT scan, along with blood sample collection and various assessments related to their heart failure symptoms and quality of life. The study will also review electronic health records to track hospitalization and survival outcomes over five years. The goal is to identify ATTR in heart failure patients earlier to facilitate timely treatment.

Who should consider this trial

Good fit: Ideal candidates are patients aged 65 and older with a confirmed diagnosis of heart failure with preserved ejection fraction.

Not a fit: Patients with end-stage chronic kidney disease on dialysis or a known diagnosis of amyloidosis will not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to earlier diagnosis and treatment of transthyretin amyloidosis in heart failure patients, improving their quality of life and health outcomes.

How similar studies have performed: Other studies have shown promising results in identifying ATTR in heart failure patients, suggesting that this approach may be effective.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patients with a confirmed diagnosis of HFpEF.
* Age ≥65 years old

Exclusion Criteria:

* End stage chronic kidney disease on dialysis (CKD stage 5 as defined as eGFR \<15mL/min)
* no history of HFrEF (LVEF\<40%) with the exception of low LVEF in the setting of acute decompensation, AF RVR, ACS/MI, etc
* Negative 99mTc-pyrophosphate scan within a year
* Unable to lie down for 15 minutes for the 99mTc-pyrophosphate scan
* Known diagnosis of amyloidosis
* Severe valvular heart disease that is uncorrected (moderate to severe is considered exclusionary)

Where this trial is running

Boston, Massachusetts

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Transthyretin AmyloidosisHeart FailureHeart Failure, DiastolicAmyloidosis
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.