Early advance care planning education for young adults with advanced solid tumors or high-grade brain tumors

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This interventional pilot uses brief educational tools—including an early ACP video featuring AYA voices—plus surveys and electronic health record review to encourage timely advance care planning. Eligible participants are patients diagnosed at ages 18–39 within the past 12 months (or with an advanced-stage relapse) who have stage III/IV solid tumors or high-grade brain tumors and receive primary oncology care at Mayo Clinic in Arizona. The study measures whether participants have ACP conversations, document advance directives, and show changes on survey measures after the educational intervention. Data will be collected through patient surveys and chart review to compare ACP uptake before and after the intervention.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Age 18-39 at initial cancer diagnosis

  * Patient \<18 years of age are not included in this pilot as Mayo Clinic in Arizona (MCA) does not treat pediatric patients
* Recently diagnosed (defined as 12 months or less from initial diagnosis or advance stage relapse) with either a stage III/IV solid malignancy or high-grade brain tumor. This includes patients who have stage III/IV recurrence of previously stage I/II solid malignancy
* Actively receiving primary oncologic care at Mayo Clinic Arizona
* Able to read, understand, and speak English
* Those who have completed prior advanced directive documents are still eligible to participate.

Exclusion Criteria:

* Age \< 18 or \> 39 at initial cancer diagnosis
* Diagnosed with stage I/II solid malignancy, low-grade brain tumor, or hematologic malignancy
* Not receiving primary oncologic care at Mayo Clinic Arizona
* Unable to read, understand, and speak English
* Patients \> 12 months from initial diagnosis or advanced stage relapses, in survivorship or on hospice
* No internet or computer/smart phone access

Where it's running

• Mayo Clinic in Arizona
  Scottsdale, Arizona, United States Recruiting

Study contacts

• Principal investigator: Allison C. Rosenthal, DO — Mayo Clinic
• Study coordinator: Sey Oloyede
• Email: oloyede.oluwaseyitan@mayo.edu
• Phone: 507-538-6811

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.