Digital tool for managing liver disease in young patients

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study is part of the MACROLIVER Project, which aims to develop a digital tool to assist patients and caregivers in managing liver disease, particularly during the transition from pediatric to adult care. The study focuses on patients aged 14 to 20 who have undergone or are awaiting liver transplants, gathering data to identify factors affecting their psychological well-being. By optimizing therapy and treatment processes remotely, the tool seeks to enhance access to care while minimizing the need for patient travel. The study will also collect retrospective data to provide a comprehensive clinical-psychological picture of these patients.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* patients between the ages of 14 and 20 who have been transplanted at the ASST-PG23 transplant center or are awaiting a liver transplant and belong to the transition to adult services
* signed informed consent
* proven use of the APPs (to be assessed based on the last 2 weeks)

Exclusion Criteria:

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Where it's running

• ASST-Papa Giovanni XXIII
  Bergamo, Milano, Italy Recruiting

Study contacts

• Principal investigator: Stefano Fagiuoli, MD — Asst-Pg23
• Study coordinator: Pietro Giani, BS
• Email: gastroenterologia.liver@asstpg23.it
• Phone: 035.2675134

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.