Diagnosing neurodevelopmental disorders in adults
Official title: Descriptive Study of Adult Patients Diagnosed Later with a Neurodevelopmental Disorder and Their Management
Run by Hospices Civils de Lyon · NCT06691048 · Data updated 2026-11-12
This study is looking to see how we can better identify neurodevelopmental disorders like ADHD and autism in adults who were diagnosed after 18, so they can get the support they need.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years to 55 Years |
| Sex | All |
| Enrollment | 300 (estimated) |
| Sponsor | Hospices Civils de Lyon Academic / other |
| Locations | 1 site (Bron) |
| Status | Recruiting |
| Started | January 8, 2024 |
| Main results expected | May 15, 2024 |
| Study ends | December 1, 2024 |
| Registry record updated | November 15, 2024 |
| Trial ID | NCT06691048 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are men and women aged 18 to 55 who have been diagnosed with a neurodevelopmental disorder after the age of 18.
✕Probably not a fit
Patients with intellectual disabilities or serious psychiatric comorbidities may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study focuses on identifying neurodevelopmental disorders in adults who were diagnosed after the age of 18. It aims to address the significant number of individuals who remain untreated and symptomatic into adulthood, highlighting the need for a diagnostic pathway for lifelong care. The study will evaluate adults with various neurodevelopmental disorders, including ADHD and autism spectrum disorders, to better understand their cognitive dysfunctions and challenges in socio-professional integration.
Why it matters
Potential benefit: If successful, this study could lead to improved diagnosis and treatment pathways for adults with neurodevelopmental disorders, enhancing their quality of life.
How similar studies have gone: While there is ongoing research into neurodevelopmental disorders, this specific focus on late diagnosis in adulthood is relatively novel and less explored.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Men or women aged 18 or over * Men or women under 55 years of age * Patients with a neurodevelopmental disorder according to the latest DSM5 criteria diagnosed after age 18 * Patient with sufficient visual and auditory skills, oral and written language in French accessible to clinical and neuropsychological evaluation. Exclusion Criteria: * Patients with intellectual disabilities * Patients with serious addictive and/or psychiatric comorbidities
Where it's running
-
Hospices Civils de Lyon
Bron, France Recruiting
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
-
Understanding brain development in congenital hypothyroidism: comparing affected children, healthy controls, and mild thyroid conditions
This study tests how brain development in children with congenital hypothyroidism compares to similar children without the condition and to kids with a mild thyroid finding.
-
Leopard: using multi-omics to boost genetic diagnosis for neurodevelopmental disorders
This study tests a multi-omics approach to find genetic explanations for neurodevelopmental disorders in people with moderate-to-severe intellectual disability.
-
Melillo Method for kids with behavior and learning challenges
This pilot test will see if the Melillo Method can be feasibly delivered in two Illinois schools to help kids aged 8 and up who have behavioral and learning difficulties.
-
Understanding how sensory brain signals vary in people with and without neurodevelopmental disorders
This study tests whether people with neurodevelopmental disorders show more variation in brain responses to sensory stimulation than people without these disorders.
-
Two-week intensive brain-focused therapy program for children with neurodevelopmental and chromosomal conditions
This program will try a two-week, individualized multimodal neurorehabilitation approach for children about 4–12 years old with neurodevelopmental or chromosomal conditions to see if it improves attention, motor skills, communication, and daily functioning.
-
Social cognition testing for 8–16-year-olds with autism, ADHD, or atypical development
This project will test a multidimensional social-cognition battery in French-speaking 8–16-year-olds with autism, ADHD, or atypical neurodevelopment to see if it better identifies social processing differences.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.