Clinical trial Recruiting at 1 site Observational

Database for childhood cancer survivors

Official title: A Research Database for Survivors of Childhood Cancer

Run by Children's Hospital Los Angeles · NCT01518400 · Data updated 2026-11-12

This study is creating a detailed database to help childhood cancer survivors by collecting health information to improve their long-term well-being and address any late effects from their treatment.

Quick facts

Study typeObservational
SexAll
Enrollment5000 (estimated)
SponsorChildren's Hospital Los Angeles
Academic / other
Locations1 site (Los Angeles, California)
StatusRecruiting
StartedFebruary 2009
Main results expectedJanuary 2050
Study endsDecember 2050
Registry record updatedJune 4, 2026
Trial IDNCT01518400 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates are individuals diagnosed with cancer before the age of 22 who are currently in remission.

Probably not a fit

Patients who are still undergoing treatment or have not been diagnosed with cancer will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to create a comprehensive clinical database for childhood cancer survivors at Children's Hospital Los Angeles. It will collect and analyze clinical information from follow-up visits to improve health outcomes and quality of life for these survivors. The database will focus on understanding late effects of cancer treatment that may arise years after therapy. By tagging data for research purposes, the study seeks to facilitate targeted interventions for this population.

Why it matters

Potential benefit: If successful, this study could lead to improved health management and quality of life for childhood cancer survivors.

How similar studies have gone: Other studies have shown success in utilizing survivor databases to improve health outcomes, making this approach promising.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Been diagnosed with cancer or similar disease
* Been diagnosed with cancer at 21 years of age or younger
* Be currently off treatment and disease free

Where it's running

  • Children's Hospital Los Angeles
    Los Angeles, California, United States
    Recruiting

Study contacts

  • Principal investigator: David Freyer, DO, MS — Children's Hospital Los Angeles
  • Study coordinator: Lina Gov
  • Email: lgov@chla.usc.edu
  • Phone: 3234488598

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.