Database for childhood cancer survivors
Official title: A Research Database for Survivors of Childhood Cancer
Run by Children's Hospital Los Angeles · NCT01518400 · Data updated 2026-11-12
This study is creating a detailed database to help childhood cancer survivors by collecting health information to improve their long-term well-being and address any late effects from their treatment.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 5000 (estimated) |
| Sponsor | Children's Hospital Los Angeles Academic / other |
| Locations | 1 site (Los Angeles, California) |
| Status | Recruiting |
| Started | February 2009 |
| Main results expected | January 2050 |
| Study ends | December 2050 |
| Registry record updated | June 4, 2026 |
| Trial ID | NCT01518400 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are individuals diagnosed with cancer before the age of 22 who are currently in remission.
✕Probably not a fit
Patients who are still undergoing treatment or have not been diagnosed with cancer will not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This study aims to create a comprehensive clinical database for childhood cancer survivors at Children's Hospital Los Angeles. It will collect and analyze clinical information from follow-up visits to improve health outcomes and quality of life for these survivors. The database will focus on understanding late effects of cancer treatment that may arise years after therapy. By tagging data for research purposes, the study seeks to facilitate targeted interventions for this population.
Why it matters
Potential benefit: If successful, this study could lead to improved health management and quality of life for childhood cancer survivors.
How similar studies have gone: Other studies have shown success in utilizing survivor databases to improve health outcomes, making this approach promising.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Been diagnosed with cancer or similar disease * Been diagnosed with cancer at 21 years of age or younger * Be currently off treatment and disease free
Where it's running
-
Children's Hospital Los Angeles
Los Angeles, California, United States Recruiting
Study contacts
- Principal investigator: David Freyer, DO, MS — Children's Hospital Los Angeles
- Study coordinator: Lina Gov
- Email: lgov@chla.usc.edu
- Phone: 3234488598
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
-
FaceSay: a computer program to help kids recognize facial expressions and improve social interactions
A computer-based FaceSay program is tested to see if it helps survivors of pediatric brain tumors who have social difficulties see facial expressions better and relate more comfortably with peers.
-
Access to Innovative Cancer Treatments for Children and Young People in Belgium
This observational study collects safety and effectiveness data on off‑label and compassionate cancer medicines used in kids and young adults up to age 25 in Belgium.
-
BCB-276 CAR T therapy for DIPG in children and young adults
This study tests BCB-276, a patient's own CAR T cells against DIPG, after standard radiation, to see if it is safe and can help extend survival.
-
CAYA cancer patients in LMICs: a forward-looking observation of care and outcomes
This study follows children, teens, and young adults with cancer in low- and middle-income countries to see how routine care affects treatment, access, and outcomes over time.
-
Virtual reality headsets to reduce anxiety and fear during intrathecal chemotherapy in children
This project will try virtual reality headsets with children aged 4–10 who are receiving intrathecal chemotherapy to see if they reduce anxiety, fear, and changes in vital signs.
-
Laser thermal therapy for young people with low-grade glioma
This research will test whether laser interstitial thermal therapy (LITT) can stop or slow recurrent or progressive low-grade gliomas in children, adolescents, and young adults.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.