Comparing severity in juvenile and adult dermatomyositis

Evaluation of Severity in Juvenile Dermatomyositis and Adult-onset Dermatomyositis: a National Multicentric Retrospective Study

Central Hospital, Nancy, France · NCT06004817

This study is trying to see how severe dermatomyositis is when first diagnosed in kids compared to adults, and how it changes over time for both groups.

Quick facts

Study typeObservational
Enrollment200 (estimated)
SexAll
SponsorCentral Hospital, Nancy, France (other)
Locations1 site (Nancy)
Trial IDNCT06004817 on ClinicalTrials.gov

What this trial studies

This observational study aims to evaluate and compare the severity of dermatomyositis (DM) at initial diagnosis between juvenile and adult-onset patients. It focuses on assessing global severity as well as organ-specific severity, considering the unique characteristics and complications associated with each age group. The study will also track damage over time during follow-up. By gathering and analyzing this data, the research seeks to enhance understanding of the disease's impact across different age groups.

Who should consider this trial

Good fit: Ideal candidates for this study are individuals diagnosed with dermatomyositis according to the 2017 ACR/EULAR classification criteria.

Not a fit: Patients with cancer-associated dermatomyositis or those with antisynthetase syndrome may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved diagnosis and management strategies for patients with dermatomyositis.

How similar studies have performed: While there is limited data on the comparison of severity between juvenile and adult-onset DM, similar observational studies in autoimmune diseases have shown promise in understanding disease progression and outcomes.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patient with dermatomyositis according to 2017 American College of Rheumatology (ACR)/ European Alliance of Associations for Rheumatology (EULAR) classification

Exclusion Criteria:

* Patient with cancer-associated dermatomyositis (within 3 years before or after diagnosis of dermatomyositis)
* Patient with antisynthetase syndrome

Where this trial is running

Nancy

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.

View on ClinicalTrials.gov →

Conditions: Dermatomyositis

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.