Collecting tissue and medical data from patients with inflammatory or invasive breast cancer

Inflammatory Breast Cancer (IBC) Registry

Observational M.D. Anderson Cancer Center · NCT00477100

This study is collecting blood, tissue, and other samples from patients with inflammatory or invasive breast cancer to help researchers learn more about the disease and improve treatments.

Quick facts

Study typeObservational
Enrollment1200 (estimated)
Ages18 Years and up
SexAll
SponsorM.D. Anderson Cancer Center Academic / other
Locations10 sites (Gilbert, Arizona and 9 other locations)
Trial IDNCT00477100 on ClinicalTrials.gov

What this trial studies

This study focuses on the collection of biospecimens and medical data to create a research tissue registry for patients diagnosed with inflammatory or invasive breast cancer. It aims to gather various samples, including blood, tissue, and stool, along with clinical and imaging data from both newly diagnosed patients and those seeking further treatment. The collected data will be analyzed to improve understanding and treatment of inflammatory breast cancer. Patients will participate in interviews and complete questionnaires to provide comprehensive information.

Who should consider this trial

Good fit: Ideal candidates include adults over 18 with a clinical diagnosis of primary inflammatory breast cancer or those highly suspicious for it.

Not a fit: Patients with non-invasive breast cancer or those who have already undergone extensive treatment may not benefit from this study.

Why it matters

Potential benefit: If successful, this research could lead to improved treatment strategies for inflammatory breast cancer.

How similar studies have performed: Other studies have shown promise in utilizing biospecimen collection for cancer research, indicating a potential for success in this approach.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Patients with clinical diagnosis of primary inflammatory breast cancer (IBC), second primary IBC, or highly suspicious for IBC (MD Anderson patients only).
* Histological diagnosis of invasive breast cancer, or highly suspicious for IBC (MD Anderson patients only) but pending breast cancer diagnosis.
* Be either newly diagnosed, or highly suspicious for IBC (MD Anderson patients only) \[Cohort I\] or have paraffin blocks or up to 20 unstained slides of each representative block(s) from the time of initial diagnosis of IBC(i.e. core biopsy and punch biopsy) and/or from mastectomy (Cohort II-MD Anderson patients only)
* Age \> 18 years
* Able to provide informed consent

Exclusion Criteria:

Where this trial is running

Gilbert, Arizona and 9 other locations

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Inflammatory Breast CarcinomaInvasive Breast CarcinomaSecond Primary Malignant Neoplasm
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.