Clinical trial Recruiting at 1 site Observational

Collecting data on childhood cancer patients

Official title: Protocol For Collecting Data On Patients With Childhood Cancer

Run by St. Jude Children's Research Hospital · NCT00684580 · Data updated 2026-11-12

This study is trying to gather important long-term health information from children who have been treated for cancer to help improve their care and monitor any lasting effects.

Quick facts

Study typeObservational
SexAll
Enrollment30000 (estimated)
SponsorSt. Jude Children's Research Hospital
Academic / other
Locations1 site (Memphis, Tennessee)
StatusRecruiting
StartedJune 8, 2000
Main results expectedMay 2045
Study endsMay 2045
Registry record updatedJune 17, 2026
Trial IDNCT00684580 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include all patients currently being treated or followed for childhood cancer at St. Jude.

Probably not a fit

Patients who are permanently discharged from care or only receiving consultative services at St. Jude will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This protocol aims to centralize the collection of long-term follow-up data on patients treated for childhood cancer at St. Jude Children's Research Hospital. It focuses on monitoring late treatment effects and outcomes for both current and former patients. By establishing a coordinated approach to data collection, the study seeks to enhance communication regarding late toxicities and improve preventive care for survivors. Data will be gathered from clinical encounters and follow-up forms provided by patients or their families.

Why it matters

Potential benefit: If successful, this initiative could lead to improved monitoring and management of late effects in childhood cancer survivors.

How similar studies have gone: Other studies have successfully implemented centralized data collection for monitoring late effects in cancer survivors, indicating a promising approach.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* All St Jude patients actively being followed or treated for childhood cancer

Exclusion Criteria:

* St. Jude consult only patients
* St. Jude patients permanently discharged from care and follow-up Permanently discharged patients include patients who have electively transferred their oncologic care to another institution, those who are noncompliant with recommended follow-up or those leaving the institution against medical advice.
* Patients referred to St. Jude for limited care on phase 1 protocol.

Where it's running

  • St. Jude Children's Research Hospital
    Memphis, Tennessee, United States
    Recruiting

Study contacts

  • Principal investigator: Melissa M Hudson, MD — St. Jude Children's Research Hospital
  • Study coordinator: Melissa M Hudson, MD
  • Email: referralinfo@stjude.org
  • Phone: 888-226-4343

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.