Collecting data and specimens from pediatric cancer patients

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational registry study involves pediatric cancer patients at various sites within the Beat Childhood Cancer Consortium. It focuses on collecting specimens and data to explore the relationship between genomic and molecular information and clinical outcomes. The study aims to utilize large gene panels, sequencing, and epigenetics to identify molecular abnormalities in tumors, which could lead to more effective treatment options. The findings may prompt further research into the molecular aspects of pediatric cancers, supported by the creation of tumor cell lines and xenograft models.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* No age restrictions
* Subjects that fit into one of the following categories:

  1. Subjects with suspected or confirmed cancers of childhood, adolescence, or young adulthood.
  2. Survivors of a cancer of childhood, adolescence, or young adulthood (\> 6 months off last therapy for cancer)
  3. Subjects with a disease-matched condition
  4. Healthy volunteers- including any participants with medical conditions that are not disease-matched.
* Written informed consent in accordance with institutional and FDA guidelines must be obtained from all subjects (or subjects' legal representative).

Exclusion Criteria:

* Subject or his/her legally authorized representative (where applicable) did not consent for specimen banking and data collection for this study.

Where it's running

• Arkansas Children's Hospital
  Little Rock, Arkansas, United States Recruiting
• Rady Children's Hospital
  San Diego, California, United States Recruiting
• Connecticut Children's Hospital
  Hartford, Connecticut, United States Recruiting
• Nicklaus Children's Miami
  Miami, Florida, United States Recruiting
• Arnold Palmer Hospital for Children
  Orlando, Florida, United States Recruiting
• St. Joseph's Children's Hospital
  Tampa, Florida, United States Recruiting

Study contacts

• Study coordinator: BCC Enroll
• Email: BCCEnroll@pennstatehealth.psu.edu
• Phone: 7175310003

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Screening for sexual dysfunction in young cancer survivors

  This study is trying out a new way to check for sexual problems in young cancer survivors aged 15-24 to help doctors better understand and support their needs.

  Recruiting at 2 sites University of Colorado, Denver · Aurora, Colorado and 1 other locations · NCT05524610

• Registry for childhood and young adult cancer patients

  This study is creating a registry for young cancer patients to track their health and well-being over time and help improve future care.

  Recruiting UNC Lineberger Comprehensive Cancer Center · Chapel Hill, North Carolina · NCT05096923

• FaceSay: a computer program to help kids recognize facial expressions and improve social interactions

  A computer-based FaceSay program is tested to see if it helps survivors of pediatric brain tumors who have social difficulties see facial expressions better and relate more comfortably with peers.

  Recruiting Children's Hospital of Philadelphia · Philadelphia, Pennsylvania · NCT07923370

• Cognitive training with real-time brain feedback for childhood medulloblastoma survivors

  This study tests whether real-time brain feedback using rt-fMRI or rt-fNIRS can help children and young adults who survived childhood medulloblastoma improve attention and working memory.

  Recruiting St. Jude Children's Research Hospital · Memphis, Tennessee · NCT07830134

• Access to Innovative Cancer Treatments for Children and Young People in Belgium

  This observational study collects safety and effectiveness data on off‑label and compassionate cancer medicines used in kids and young adults up to age 25 in Belgium.

  Recruiting Universitaire Ziekenhuizen KU Leuven · Antwerp and 5 other locations · NCT07727694

• BCB-276 CAR T therapy for DIPG in children and young adults

  This study tests BCB-276, a patient's own CAR T cells against DIPG, after standard radiation, to see if it is safe and can help extend survival.

  Recruiting at 3 sites Phase 2 BrainChild Bio, Inc · Los Angeles, California and 5 other locations · NCT07680439

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.