Care management for hospice transitions for people with advanced dementia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This feasibility study pilots a dementia care management checklist designed to guide end-of-life care and hospice transitions for people living with dementia and their care partners. It is a single-arm, unblinded feasibility trial embedded in usual home health care management. The study will measure feasibility, acceptability, fidelity, and usability of the checklist, and will also look at hospice enrollment timing and care partner satisfaction. Participants include care partners, persons with dementia, home health care professionals, medical providers, and home health care administrators involved in hospice transitions. The intervention targets improving coordination and communication during hospice transitions within real-world home health care settings.

Why it matters

Who can join: the full rules

Inclusion:

Care Partners and PLWD Dyad:

1. Care partners of PLWD who have a diagnosis of moderate to severe dementia.
2. Able to provide informed consent

HHC Professionals:

Care Managers and Field Nurses:

1. Care managers who regularly engage hospice transitions with care partners of PLWD
2. Age 18 or older

Medical Providers:

1. Medical providers (e.g., physicians and nurse practitioners) who refer patients for hospice enrollment.
2. Age 18 or older

HHC Administrators:

1. Home healthcare administrators who work with the Certified Home Health Agency or the Advanced Illness Management Program that refers patients to hospice care
2. Age 18 or older

Exclusion

Care Partner and PLWD Dyad

1. Under age 18
2. Care partners who are caring for PLWD with Mild Cognitive Impairment
3. PLWD with Mild Cognitive Impairment

HHC Professionals: Care Managers, Medical Providers, Administrators

1\. Do not have experience managing hospice transitions for PLWD

Where it's running

• NYU Rory Meyers College of Nursing and VNS Health
  New York, New York, United States Recruiting

Study contacts

• Study coordinator: Komal P Murali, PhD, RN, ACNP-BC
• Email: kp47@nyu.edu
• Phone: 212-998-5783

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.