Assessing wheelchair positioning for patients with neuromuscular diseases

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to describe the sitting posture and associated pain in wheelchair users with neuromuscular diseases. It will evaluate the effectiveness of recommended equipment and positioning protocols through follow-up consultations. The study utilizes validated tools to assess postural control and pain levels, with the goal of developing best practice guidelines for wheelchair positioning in this patient population.

Why it matters

Who can join: the full rules

Inclusion Criteria :

* Patient with neuromuscular disease
* Written informed consent (IC) obtained
* Adult patients (\> 18 years) Or
* Adults under guardianship who has given theirs oral consent and guardian's consent obtained Or
* Childs who has given theirs oral consent and parents' consent obtained
* Wheelchair user

Exclusion Criteria :

• Patient not seen in positioning consultation by N. Pellegrini and / or E. Dupitierr

Where it's running

• Groupement Hospitalier Intercommunal du Vexin / Site d'Aincourt - Pôle Soins de Suite et de Réadaptation spécialisés
  Aincourt, France Recruiting
• Clinique du Positionnement de l'AFM
  Évry, France Recruiting

Study contacts

• Principal investigator: Nadine Pellegrini — Groupement Hospitalier Intercommunal du Vexin
• Study coordinator: Maryline Delattre
• Email: maryline.delattre@ght-novo.fr
• Phone: +331.30.75.41.31

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Other studies for the same condition or treatment. Recruiting studies are listed first.

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.