Aftercare for childhood cancer survivors in Switzerland

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort investigation focused on the transition of follow-up care from pediatric oncology to adult care for adolescent and young adult survivors of childhood cancer. It aims to gather data on the preferences and expectations of these survivors regarding their follow-up care through questionnaires. The study addresses the critical need for effective transition strategies, as many survivors experience late effects from their treatment. By comparing different aftercare models, the study seeks to identify the best practices that meet the needs of these individuals.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* 5-year survivor of childhood cancer
* Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)
* Age at diagnosis \<18 years
* Age at study ≥16 years
* At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition).
* Written informed consent

Exclusion Criteria:

* Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)
* \<5 years after therapy of a relapse or palliative situation
* Severe cognitive impairment, which makes it impossible to complete the questionnaire independently
* Insufficient knowledge of the German language
* Informed consent form not signed

Where it's running

• Division of Oncology - Hematology, Department of Pediatrics, Kantonsspital Aarau
  Aarau, Switzerland Recruiting
• Division of Oncology/ Hematology, University Children's Hospital Basel
  Basel, Switzerland Recruiting
• Division of Oncology/ Hematology, Department of Pediatrics, Kantonsspital Lucerne
  Lucerne, Switzerland Recruiting

Study contacts

• Principal investigator: Katrin Scheinemann, MD — Kantonsspital Aarau
• Study coordinator: Katrin Scheinemann, MD
• Email: katrin.scheinemann@ksa.ch
• Phone: 004162 838 4909

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Cognitive training with real-time brain feedback for childhood medulloblastoma survivors

  This study tests whether real-time brain feedback using rt-fMRI or rt-fNIRS can help children and young adults who survived childhood medulloblastoma improve attention and working memory.

  Recruiting St. Jude Children's Research Hospital · Memphis, Tennessee · NCT07830134

• Community-led, family-centered communication for Hispanic childhood cancer survivors

  This study tests a family-focused communication approach to help young Hispanic adult survivors, their families, and clinicians talk more effectively about survivorship care.

  Recruiting Stanford University · Palo Alto, California · NCT07606443

• Hematologic cancer survivors after stem cell transplant try a personalized care plan

  This study tests a personalized Survivorship Care Plan for people with hematologic cancer who have undergone a stem cell transplant to see if it’s feasible within the Italian health system.

  Recruiting Azienda USL Reggio Emilia - IRCCS · Reggio Emilia · NCT07579065

• Support program to improve quality of life for Chinese cancer patients and survivors

  This program will try different mixes of education, counseling, and peer support to see if they help Mandarin-speaking adults with cancer or who have finished treatment feel better.

  Recruiting at 7 sites Memorial Sloan Kettering Cancer Center · Basking Ridge, New Jersey and 6 other locations · NCT07454330

• Blood biomarkers for treatment-related brain injury in children with brain tumors

  This project will test whether blood plasma biomarkers can show treatment-related brain injury in children with primary brain tumors by comparing those who receive radiotherapy, those who do not, and healthy children of the same age and sex.

  Recruiting Uppsala University · Uppsala · NCT07381959

• On-Trac: Online training to manage anxiety after cancer

  This program will try an online CBT- and ACT-based education plus brief coaching to help adult cancer survivors manage ongoing anxiety.

  Recruiting Dana-Farber Cancer Institute · Boston, Massachusetts · NCT07305740

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.