A digital tool to empower adults with congenital heart disease

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This clinical trial evaluates a digital health intervention called 'Empower My Congenital Health' designed to enhance the engagement and self-advocacy skills of adults with congenital heart disease (CHD). The intervention includes features such as a digital medical passport, health information, community support, and reminders for specialist visits. Participants will be recruited from clinics and through various outreach methods, and their engagement will be assessed through surveys at regular intervals. The study aims to determine if this intervention improves patient confidence in navigating the healthcare system.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* have congenital heart disease
* 18 years or older
* can sign the informed consent

Exclusion Criteria:

* developmentally delayed
* unable to consent

Where it's running

• University of California, San Francisco
  San Francisco, California, United States Recruiting

Study contacts

• Principal investigator: Anushree Agarwal, MBBS, MAS — University of California, San Francisco
• Study coordinator: Anushree Agarwal, MBBS, MAS
• Email: anu.agarwal2@ucsf.edu
• Phone: 415-353-3817

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Senior Center Medication Safety and Empowerment Curriculum

  A program for adults 55+ and their care partners to learn how to safely manage medications and talk with doctors about safer options.

  Recruiting State University of New York at Buffalo · Buffalo, New York · NCT07799610

• Adapting and testing PEN-Plus in Zambian primary care

  Aiming to see if the PEN-Plus package can be adapted and used in two Zambian hospitals to better manage chronic diseases like heart disease, diabetes, hypertension, and sickle cell in primary care.

  Recruiting Centre for Infectious Disease Research in Zambia · Lusaka, Lusaka Province · NCT07753681

• Wireless NIRS Sensor Use in the NICU for Monitoring on Neonates

  A wireless NIRS sensor is tested on infants in the NICU to see how well it stays on and how it notes brain signals when used alongside standard wired sensors.

  Recruiting McGill University Health Centre/Research Institute of the McGill University Health Centre · Montreal, Quebec · NCT07732244

• Screening for lipid disorders in children and teens with chronic diseases to flag cardiovascular risk

  This study tests a blood test and a questionnaire to screen children and teens with chronic conditions for lipid metabolism disorders and familial hyperlipidemia.

  Recruiting Jena University Hospital · Jena · NCT07716488

• Prehabilitation before heart surgery for adults with congenital heart disease

  This study is testing whether a tailored, supervised exercise program before heart surgery helps adults with congenital heart disease perform better and improve fitness.

  Recruiting Liverpool Heart and Chest Hospital NHS Foundation Trust · Liverpool · NCT07700459

• Accessible care model comparing nurse-led versus physician-led transition education for teens and young adults with congenital heart disease

  This project will test whether an accessible care model and nurse-led versus physician-led transition education helps teens and young adults (ages 12–26) with congenital heart disease move successfully from pediatric to adult heart care.

  Recruiting University of Wisconsin, Madison · Madison, Wisconsin · NCT07559253

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.