Using a national pediatric health system to map chronic primary pain in kids and guide faster, kid-friendly care
Official title: Leveraging a National Pediatric Health Learning System for Phenotyping Pediatric Chronic Primary Pain to Advance Timely Patient-Centered Care
Funded at Seattle Children's Hospital · NIH-11419915 · Data updated 2026-11-12
A big data project uses electronic records and patient data from children to identify which kids have chronic primary pain and how to give them timely, personalized care.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Seattle Children's Hospital NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 19, 2025 |
| Project end | July 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $2,226,589 |
| NIH project number | 5UC2AR086516-02 |
| Project ID | NIH-11419915 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children aged 0-11 with or at risk for chronic primary pain who are treated within the participating PEDSnet institutions and speak English or Spanish.
✕Less likely to help
Children without chronic pain or those not seen within the participating institutions may not directly benefit.
What this research studies
This project will use data from a national pediatric learning health system to create computable profiles of chronic primary pain in children 0-11 years old and beyond. Researchers will analyze retrospective EHR data and collect prospectively from 600 children at four time points over a year to understand pain outcomes and care pathways. The goal is to build a precision health model that helps clinicians predict risk and tailor care to each child, in both English and Spanish-speaking communities.
Why it matters
Potential benefit: If successful, it could help clinicians identify at-risk children earlier and personalize pain care to improve outcomes.
How similar studies have gone: Previous work shows that data-driven phenotyping can improve identification of complex pain conditions, but this study advances through a national learning system and prospective data collection.
Where this research is happening
-
Seattle Children's Hospital
Seattle, United States Active
Researchers
- Principal investigator: Palermo, Tonya M — Seattle Children's Hospital
- Study coordinator: Palermo, Tonya M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.