Reducing Burden for Care Partners of People with Alzheimer’s and Related Dementias
Official title: Reducing Burden in Care Partners of Community-Dwelling Persons with Dementia and Oropharyngeal Dysphagia
Funded at Feinstein Institute for Medical Research · NIH-11418003 · Data updated 2026-11-12
This project tests a user-friendly Web tool to help care partners of people with dementia manage oropharyngeal dysphagia and reduce daily caregiving burden.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Feinstein Institute for Medical Research NIH-funded |
| Lab location | 1 site (Manhasset, United States) |
| Project start | August 15, 2023 |
| Project end | July 31, 2028 |
| Funding year | 2026 |
| Award (this year) | $484,985 |
| NIH project number | 5R33AG079930-04 |
| Project ID | NIH-11418003 on NIH RePORTER |
Who could benefit from this research
✓Could help
Care partners of community-dwelling individuals with Alzheimer’s disease or Alzheimer’s-related dementias who are involved in feeding and OD management.
✕Less likely to help
Care partners who are not involved in day-to-day feeding decisions or who do not have access to web resources may see limited benefit.
What this research studies
If you care for a loved one with Alzheimer’s disease or related dementias who has swallowing difficulties, this project adapts an online caregiver resource to your needs. It will gather feedback from care partners to shape content and test how easy the tool is to use in real life. The team will also refine the tool through usability testing to ensure it supports caregivers in daily OD management and reduces stress. The goal is a practical, accessible digital assistant that caregivers can rely on at home.
Why it matters
Potential benefit: Care partners may experience less burden and greater confidence in managing feeding challenges for their loved ones.
How similar studies have gone: Prior work adapting caregiver tools for other cancers and chronic conditions informed the approach, with usability improvements yielding better engagement in similar digital supports.
Where this research is happening
-
Feinstein Institute for Medical Research
Manhasset, United States Active
Researchers
- Principal investigator: Sinvani, Liron Danay — Feinstein Institute for Medical Research
- Study coordinator: Sinvani, Liron Danay
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.