Person and Caregiver Relevant Outcomes for dementia care
Official title: Person and Caregiver Relevant Outcomes Core (F)
Funded at Brown University · NIH-11399418 · Data updated 2026-11-12
A patient-facing core project helps identify dementia care outcomes that matter to people living with dementia and their caregivers, using real-world data to guide care improvements.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Brown University NIH-funded |
| Lab location | 1 site (Providence, United States) |
| Project start | September 1, 2019 |
| Project end | August 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $243,110 |
| NIH project number | 5U54AG063546-07 |
| Project ID | NIH-11399418 on NIH RePORTER |
Who could benefit from this research
✓Could help
There is no specific patient enrollment described; the work targets people affected by Alzheimer’s disease and related dementias and the care partners involved in their care in real-world health care settings.
✕Less likely to help
The project does not involve a direct clinical intervention for patients; it focuses on outcome measurement frameworks.
What this research studies
This grant supports building and refining a core set of outcomes that matter to people with dementia and their caregivers, using data from everyday health records. It emphasizes practical, real-world measurements that can be collected without extra burden on patients or providers. The work involves creating an online library of potential outcomes and engaging with people living with dementia and their care partners to confirm what outcomes are most important and feasible to track in usual care settings.
Why it matters
Potential benefit: If successful, it could make dementia care more person-centered by focusing on outcomes that truly matter to patients and families and by making data easier to collect in routine care.
How similar studies have gone: Previous work has demonstrated that selecting relevant outcomes improves trial usefulness and care quality, with ongoing efforts to align measures with patient priorities.
Where this research is happening
-
Brown University
Providence, United States Active
Researchers
- Principal investigator: Hanson, Laura C — Brown University
- Study coordinator: Hanson, Laura C
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.