Peer support and patient stories to help people join pulmonary rehab
Improving Participation in Pulmonary Rehabilitation through Peer-Support and Storytelling
['FUNDING_OTHER'] · BAYSTATE MEDICAL CENTER, INC. · NIH-11179126
This project sees whether pairing adults with COPD with trained peers and sharing real patient stories helps them start and stay in pulmonary rehabilitation.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | BAYSTATE MEDICAL CENTER, INC. (nih funded) |
| Locations | 1 site (SPRINGFIELD, UNITED STATES) |
| Trial ID | NIH-11179126 on ClinicalTrials.gov |
What this research studies
If you have COPD and have been offered pulmonary rehab, this project may pair you with a trained peer who completed rehab and share short videos of other patients' experiences, with most contacts by phone or video. You would receive peer support and storytelling materials designed to encourage enrollment and ongoing attendance in pulmonary rehabilitation. The team will compare different ways of delivering peer support and stories and track who begins and completes rehab, along with symptoms and health care use. Participation may include brief surveys, phone check-ins, and watching or discussing recorded stories.
Who could benefit from this research
Good fit: Adults (21+) with COPD who have been referred to pulmonary rehabilitation or who recently had an exacerbation are the best candidates for this project.
Not a fit: People without COPD, those who are too frail or have severe cognitive impairment to take part in rehab, or those without reliable phone/internet access may not benefit from this program.
Why it matters
Potential benefit: If successful, more people with COPD may start and finish pulmonary rehab, which could ease breathlessness, improve quality of life, and reduce emergency visits and hospital stays.
How similar studies have performed: Previous studies show telephonic peer support and storytelling can be acceptable and helpful in chronic disease care and for blood pressure control, but combining them specifically to boost pulmonary rehab participation is a newer approach.
Where this research is happening
SPRINGFIELD, UNITED STATES
- BAYSTATE MEDICAL CENTER, INC. — SPRINGFIELD, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: LINDENAUER, PETER KYLE — BAYSTATE MEDICAL CENTER, INC.
- Study coordinator: LINDENAUER, PETER KYLE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Chronic Disease