Pediatric Long COVID Care Network: Improving access and coordinated care for children
Official title: Mid-Atlantic Pediatric Long COVID Network:Implementing patient-centered and multi-disciplinary practices to improve pediatric long COVID
Funded at Hugo W. Moser Res Inst Kennedy Krieger · NIH-11415424 · Data updated 2026-11-12
A nationwide pediatric program is testing a patient-centered, multi-disciplinary approach to help children with long COVID, especially in underserved communities.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Hugo W. Moser Res Inst Kennedy Krieger NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project start | September 30, 2023 |
| Project end | September 29, 2028 |
| Funding year | 2026 |
| Award (this year) | $856,772 |
| NIH project number | 5U18HS029920-04 |
| Project ID | NIH-11415424 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children aged 0-11 years with long COVID or at risk for long COVID, especially those from underserved or resource-limited backgrounds.
✕Less likely to help
Children without long COVID symptoms or those not connected to care networks may not directly benefit.
What this research studies
This grant supports a coordinated, family-centered approach to long COVID in children, building on an existing pediatric rehabilitation clinic. It aims to expand integrative care, improve access to specialized services, and support families navigating school and healthcare needs. The project involves implementing a multi-disciplinary care model in the community and medical home to address gaps in treatment and access for vulnerable pediatric patients. The team will work across clinics to streamline referrals, care plans, and follow-up to improve outcomes for kids with lingering COVID-19 effects.
Why it matters
Potential benefit: If successful, the program could improve symptoms, functioning, and access to care for children with long COVID.
How similar studies have gone: There are recognized pediatric long COVID programs, but this project expands an integrated, community-based model that is still being established.
Where this research is happening
-
Hugo W. Moser Res Inst Kennedy Krieger
Baltimore, United States Active
Researchers
- Principal investigator: Malone, Laura a — Hugo W. Moser Res Inst Kennedy Krieger
- Study coordinator: Malone, Laura a
Related research
Other NIH-funded projects on the same topics.
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Defining neutrophil biology in pediatric Long COVID
This project looks at why some kids develop Long COVID by studying neutrophils to help find new ways to diagnose and treat the condition.
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Advancing Long COVID Care in Our Community through Access and Collaboration
A community-focused project to make long COVID care more accessible and equitable for people in St. Louis and rural Missouri.
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Comunidad: Expanding Long COVID care in underserved South Texas
A new program will broaden and coordinate Long COVID care for underserved communities in San Antonio and South Texas to improve access and outcomes.
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Atlanta Long COVID Coordinated Care Model for Diverse Populations
A regional program in Atlanta aims to improve access and coordination of care for people with Long COVID, especially in underserved communities.
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Long COVID Care Resources and Education to Improve Community Health
A program to support federally-qualified health centers in providing better Long COVID care through education, a shared hub, and easy referral pathways for underserved communities.
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Improving Access to Multidisciplinary Care for long COVID patients
A team at UW is expanding a long COVID clinic to help more patients get coordinated, multidisciplinary care—especially in rural areas and underserved communities.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.