Neurava epilepsy risk forecasting with wearable data
Official title: Center for Innovative NeuroTech Advancement - CINTA. (18058 Neurava - Yr2)
Funded at Massachusetts General Hospital · NIH-11551718 · Data updated 2026-11-12
A study using wearable data and machine learning to forecast SUDEP risk in adults with epilepsy who have refractory seizures.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Massachusetts General Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project start | September 30, 2022 |
| Project end | June 30, 2027 |
| Funding year | 2026 |
| Award (this year) | $1,473,250 |
| NIH project number | 3U54EB033650-05S8 |
| Project ID | NIH-11551718 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults with epilepsy, including those with drug-resistant seizures, who may use wearable monitoring and be part of a monitoring/validation effort.
✕Less likely to help
People without epilepsy or those not using wearables or not meeting the study’s data collection criteria may not benefit.
What this research studies
If you have epilepsy and don’t respond to medications, this project uses wearable devices to collect data on seizures and breathing/heart patterns. Researchers will develop a machine learning model to forecast when someone might be at higher risk for SUDEP, aiming to give earlier warnings. The goal is to help clinicians and patients take steps to reduce risk and improve safety. This is a collaboration led by Massachusetts General Hospital to turn continuous health signals into a practical risk score.
Why it matters
Potential benefit: If successful, the approach could provide real-time risk alerts to help prevent SUDEP.
How similar studies have gone: Previous work has shown that multi-modal data can reveal physiological signals related to seizure risk, but a validated SUDEP forecasting tool is not yet available.
Where this research is happening
-
Massachusetts General Hospital
Boston, United States Active
Researchers
- Principal investigator: Schachter, Steven C. — Massachusetts General Hospital
- Study coordinator: Schachter, Steven C.
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.